[zasrsParticipant]

Hee Hee:-D 😀

Thats the trouble with e mails and texting I press send then re read the text/ e mail and regret it:-(

sarah xx

[zasrsParticipant]

Dear Jean

Men find illness so difficult to cope with being sick , gordon is on GCSF plus epo to boost his bone marrow, i have to remember all the dates times for the meds, gordon ignores it and gets then cross when i inject him, he has had a wake up call this weekend, as he has spent the last two nights in hospital with a chest infection and has had antibiotics plus blood plus platlets plus litres of fluid, maybe he will now take it easy and listen to me!! And pink pigs fly pass the window!!

Hope you get away, not much fun though if Frank is in so much pain.

Best wishes Sarah

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Hi Gill

I don,t do breakfast in bed cause so much i do is wrong! It is so tricky being a 'carer' i guess it is what we sign up to with our marrige vows, many years ago now, i also feel the idiot who married the pain that got ill!!

with best wishes sarah

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Hi Amanda

I agree with Liz and Jo try Macmillian Service you can find them through your GP and or the local hospice. Myeloma uk are also brilliant, good luck your mum is lucky to have a caring family.

Best wishes Sarah

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Hi Gaye

so sorry to read that you are still suffering from such wearing bone pain, I hope that eventually the Rt will kick in as Min has said
Gordon takes tramadol 2 x daily 50mg mainly because he needs a new hip due to osteo arthritis not mm and he does not seem too spaced out!! he drives, works sort of, but tramadol does not suit everyone.

Hope things improve.

Sarah xx

[zasrsParticipant]

Thanks Dai, beautiful music and lyrics just what i need.

sarah

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my word David I hope they dont come to sussex, my poor dog would have a heart attack he hates squirrels!

Sarah

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Hi Min

I also watch a lot of late night telly, it is rubbish!! Except for the now and again good films, or the very old soaps, I ended up watching the soap set in the solent with lots of very beautiful yachts more interresting than the dialogue.
I still think i am on holiday!! not sure when that feeling will go, if ever.
I help my son and this year we have 200+ ewes to lamb down, 1st lambs today about 2 weeks prem, so annoying, usually i have 2 weeks holiday and hope they all lamb before i go back to work, this year they can take as long as they like:-D I will get use to not working i am sure as i a sure you will. Just filled in my pension form as well, i hope we dont have to live on baked beans before i get my state pension!! They give me such winddy popps:-/

with love sarah

[zasrsParticipant]

Hi All

Gordon had velcaide last year at Kings and because we live in sussex he had treatment once a week with a week off and seemed to sail through the treatment ( except for the dex grrr:-( ), he went into remission after the 3rd cycle, but had 6 al told prior to sct. maybe the americans have done more recerch and i x weekly is better for side effects.

Good luck all you velcaide junkies!!!!

Sarah xx

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Hi Min

I am free too:-D it feels very weird at the moment, having a …up with ex work mates tomorrrow night. I have a huge form to fill in for a pension, so will do that with the cesus, hope i dont muddle them!!

Good luck with our new freedom, no more problems on having time off for appointments, getting gordon to hospital etc. Woopee!

sarah x

[zasrsParticipant]

Hi Min

thank you, what a hoot and to think we put our faith in Doctors!!

Sarah xx

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Hi Roz

good to hear from you, i was wondering how you are. we are going away for a few days tomorrow after seeing the consultant, like you so rightly say live for today.

best wishes

sarah x

[zasrsParticipant]

Hi only me

My husband has mm he had a cousin one the maternal side who died of leuchemia (spelling) at a young age and two 2nd cousins on the paternal side who also died of blood cancers, so who knows!

sarah

[zasrsParticipant]

Hi H
So sorry you have joined this site, but there are some anazing people here.My husband has mm and was diagnosed 49 years old in 2002, i think he had had it for several years. He has had two stem cell transplants the last one in november last year, and seems to be coping well. cannot comment on the treatment you are having everyone seems to be different and reponds in different ways. I have found in the past going on google sites so confusing the american ones are a nightmare! The only advice i can offer is to repeat what david said, is stick to myeloma uk they are brilliant.

Good luck

Sarah

[zasrsParticipant]

Ooh Min

I remember the liberty bodice, nice and toasty!!! Why was it called a liberty bodice? I seem to recall that mine had ribbons on it rather than hooks. I am sure once i wore a bra i did not wear a bodice as well. At least we do not bra made for us with canterlevers like poor Jane Russel, what a cleavage, imagine the back ache:-(

All the best sarah

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