[zasrsParticipant]

Hi Min

I resigned from my job on thursday, the liberation i now feel is amazing why did i not do it sooner! I am not old enough to a pension yet, but i dont care we will cope!! I can reclaim my garden and fix the greenhouse and play with my grandchildren, yippee!!!

Sarah

[zasrsParticipant]

Hi Brdget
So glad all was nearly pain free yesterday, hope the result is positive as well!!

Nurses are so awful!! There you were having a lovley sleep and they woke you up!! Typical!!

Love sarah

[zasrsParticipant]

Hi Gaye
It must a relief to know what is causing the pain, hopefully the rt will help and you dont have to wait long.

All the best sarah

[zasrsParticipant]

Hi David

Gordons pp went to nil after his 1st sct quite quickly i think then rose again 6 years later, spent two years on rivlamid and 'friend' dex, then rose again, 6 or 7 cycles of velcaid the another sct, we went to kings two weeks ago but dont know what the pp was as it takes quite a time for the result, as i am sure you know!

Have no idea what the values were at each time, we always seem to and still do try to ignore this wreatched mm,and hope it will go away, it never does though!! Youd have thought we would have learnt by now!

Today is gordons 9th anniversary of mm diagnosis, hopefully a cheery thought to old and newcomers, he is still working with his beloved red tractor.

Love to all
Sarah
Sarah

[zasrsParticipant]

Dear Bridget

Hope you are having a wonderful, pain free birthday, I will raise a glass of rose to you, before watching silent witness!.

much love

sarah:-D 😀

[zasrsParticipant]

Hi All

I will also be watching, i was so shocked when it looked as though Harry was gone, then shocked all over again when he turned up alive!!!

I will raise a glass to us all sados watching it, there is nothing else on the box.

love to all

sarah

[zasrsParticipant]

Hi Bridget

My mum left me a fur coat!!!

Love Sarah

[zasrsParticipant]

H Bridget

Lovley vision of you wearing your beautiful red shoes!!

Red shoes no k…

Or is red hat no k….

never can remember!!

best wishes Sarah

[zasrsParticipant]

Hi All

As only a carer of a husband with mm, who has not had to suffer anything like you all have, spine ops etc, I am stunned amazed and privalidged that i communicate with you and you with me.

My very best wishes to you all and hope and pray that somewhere there is a miracle around the next corner for you all, and gordon!!

with love

sarah

[zasrsParticipant]

Dear Min

Thoughts and hugs, not too sure about the lolling tongue! Keep taking the meds.:-(

luv sarah

[zasrsParticipant]

Hi David

Thank you for your reply, although gordons family is in denail and not at all helpful, we do have 2 sons and a daughter + 2 grandbabies who are just there, and are wonderful, always a silver lining somewhere!

best wishes

sarah

[zasrsParticipant]

Hi Briget

Has the rt helped the your pain? As you are posting late at night I wonder if you have pain, i do hope it is improving. Seems as though you are having good care from your team.

with love from sarah

[zasrsParticipant]

Dear Jean

How wonderful to have a family who ask how Frank is and care!! Gordon's parents seem think that he should pull homself together and it will go away,they are both in thier 80's and have never been ill. When Gordon had his 1st sct my farther in law agreed to check his(gordon) cattle, on the evening gordon got home from kings father phoned ' good you are home you can now check your cattle yourself' my poor husband's vision was not right at the time and he could not drve, he had lost height, body weight, muscle tone and had not a hair on his body!! i broke down then the support from his two brothers and parents was and still is, not good. His parents ask out last friday to the pub, gordon is not that well coughs etc won't goaway and he realy did not feel well enough to go out he is still only 9 weeks post transplant and his mother really falt he should have made the effot as she has a cold too! All you post transplants will i think understand how gordon felt, i do !

Gordon came out after his 2nd scr in december 2010 and still has not seen his younger brother, he saw his 2nd brother two weels ago for the 1st time and that was due to us arranging to meet in a pub. Not a lot of love in his family.

Gaye you have really bought out some deep thouhts in your posting, thank you, is is comforting to know we are not the only ones living with cancer,trying to live a normal life, what ever that is now!!

with love

sarah

[zasrsParticipant]

Hi Min

gordon did really well on rivlamid ( b….dex) for two years, very little in the way of side effects (b…..dex)!

we have a packet here at home i agree very cheap packaging i dread to think how much it is worth.

best wishes sarah xx

[zasrsParticipant]

Hi Gaye

thank you for sharing such an amazing thought for the day. Like min I am a carer and have lived with this monster cancer for 9 years. I work as a district nurse so talking about cancer at work is second nature but still sometimes think why us but then again think why not!!

Even with my medical background i still feel i am in denial about this cancer which and tend to think very long term, not so my husband who is far more realistic

When gordon was diagnosed we also told up to 5 years, I totally put my head in the sand! And in a way it helped and he is still going sort of strong 4 years after he should not be here!!

Gordon was 49 at looking back had had mm for sometime, most of aour married life (35 years) had been 'no back ache today,' or 'I am in back pain today'.

Like you Gaye get a lot of help from this site and it helps me, i think to try to live each day and do things together as much as possible, even though gordon is a sort of working farmer! I think the penny has dropped, then other days it has gone again. Is this good or bad? Maybe it is the way i cope, like Min i could only think how would i cope rather than think of my poor husband! But maybe that is a survival feeling when the children are still quite young.

Thank you again for your thought for the day.

best wishes Sarah xx

[Author]

Posts