[zasrsParticipant]

Hi Min

Gordon and I would often end up at loggerheads, this mean mean disease. I too would walk out, i think it helped, try talking to the macs, it sounds as though you have a good rapport with them, someone needs to listen to you both, poor Peter, just wants his normal life back.

with love sarah xx

[zasrsParticipant]

Hello one and all

Wish i had dreams like you briget, what fun all those bras blooming away happily!!

Dia, the weather here is also good for the weekend, hopefully we will finish our last field of wheat, down here in the south farmers are almost protect there are so few. I wish, we normally end up with road rage!

love to all

sarah

[zasrsParticipant]

Hi Eve

Keep laughing!!! Honestly some people the things they say!!

Sarah xx

[zasrsParticipant]

Hi Min
There is no way Peter should be going back and forward to hospiyal the district nurses should be able to do daily bloods, as Dai says things always go wrong on a friday afternoon, I know this as a DN and a carer, so shout loud. I hate to say this but macmillian nurses seem to work 9-5pm monday to friday, hopefully you have accsess to the hospital ward.

My very best wishes to you both

Sarahg

[zasrsParticipant]

dear Bridget

Stay stong and keep swearing.

With love sarah xx

[zasrsParticipant]

hi all my cyber friends thank you for being there i get so much suppout from you all you all know what this mm is all about. i am totally unable to talk to anyone on the phone at the moment thank god for email, texts and cyber space.
sarah xxx

[zasrsParticipant]

Thank you every one for your postings, dai your description of the photo of your relatives, all those yaers ago was lovley. i am sitting here with gordon in bed feeling that it is all happening to someone else.
with love sarah xx

[zasrsParticipant]

hi bridget

so pleased your ankels have decided to return to you have alovley drug free holiday
with love sarah

[zasrsParticipant]

thank you all my cyber friends. gordon home tomorrow no more treatment his kidneys are failing as is his liver, my living room has a bed for him i am in total shock. we are in the middle of an amazing harvest with gordon not helping. life is too unfair.

my good wishes to all of you i cannot sat keep taking the pills they dont f…………….. work all the time

sarah xxx

[zasrsParticipant]

Hi All

Gordon now vwry sick the myeloma has decided to attack his liver, he has yellow whites instesd of white, i thought i had lost him yesterday so much pain a chest infection his protin levele have come down to 96 from 102 some improvment.

How many tears can one person cry.

sarah

[zasrsParticipant]

Hi Dai

I am gobsmacked by your treatment!! we all pay for treatment through our taxes the medics are all paid by us the arrogance of some medics drive me mad. We had one in king,s he thought nothing of letting a door smack into me he was far to much up his bottom to see a lowley terrified wife whose husband was having a bone marrow transplant!!

Good luck tomorrow Dai i am still trying to work out how august 10 is an emergency appointment for a potentally fatal clot!! At leasst you are blood thinning drugs.

sarah

[zasrsParticipant]

Hi eve

I love Joe,s sword of damacles! Think i will take that with me when i go to the hospital today!!
I am always pesamistic it makes the weenist scrap of good news mega fantastic. Gordons hb went from 7 to 7.5 and his neut from .5 to .7 after blood platlets gcsf etc i was thrilled, the results are trully pathetic after all that treatment!! But I quess they are going the right way i will be very apprehensive again today it is the only way i can cope.

Min your kitchen sounds wonderful, i think we stopped working about the same time, i often think how did i ever have time to work:-)
love to you all
Sarah xx

[zasrsParticipant]

Hi Dai

Poor you i agree with eve and min i wam a ex district nurse and the d dimmer test takes a few mins it is not conclusive and if poss you will a scan to confirm all very easy to have Can you phone you gp surgery today they should be able to do a d dimmer. It really is scarry reading other posts at the total incompidence of some, not all, thank god nhs staff!! Is it just me, but some newly qualified drs think they know everything and they know nothing and will not listen to patients, gordon and i met one in Kings last winter he was so far up his bottom i bet he could not see daylight!! Good luck Dai get that leg tested ASAP

Sarah:-D

[zasrsParticipant]

Hi Joe

we went on the train up snowden a couple of years ago, it is very steep and very beatiful!! did you have a drink at the top? we could not see a thing when we got there so much mist. glad you had a good time in wales such lovley sceanary. hope all the new kitchens are great, such an upheaval when they are being fitted, but worth it 😀
love sarah xx

[zasrsParticipant]

Hi all you lovley cyber friends

Gordon hopefully home tomorrow, i think it is his call i can give his meds etc as well as the hospital, then 2-3 x weekly blood tests + blood and platlets as and when + revlamid and the rest!! I hope the treatment works, you have all been there and beyond. Have used the blue badge to deliver him to hospital and will use it again to collect, at least it will have had 2 outings!!

with love sarah xx

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