Val, I’m new to this Forum and not sure if im doing this correctly, I’m trying to respond to your request regarding switching from Lenalidomide to something else.
I’m 59 and was first diagnosed late December 2018, just before Xmas.
Was on VDT for many months and light chain levels came down, but then stopped dropping and neuropathy in my fee was be3coming a real concern as I was told it could be irreversible- so my consultant got me onto Lenalidommide. We were really pleased as we had read great things but after 4 rounds ( I think) light chain levels started rising.
So now I am on 15 mg Idarubicin (Zavedos is the registered name), alongwith 20 mg Dex. I take it for 4 days only, and the dex. I also take anti sickness etc.
My Consultant said its not a drug that is often used these days as its been around for some time – but it is a very good drug. I think its a case of finding one that works for each individual metabolism. But is worries me being on a drug and that is older and been superseded by newer stuff. So far I have not experienced any adverse symptoms other than ‘hot feet and face’.
I cant help with the drug you’ve been put on, sorry, but good luck!
Val, I’m new to this Forum and not sure if im doing this correctly, I’m trying to respond to your request regarding switching from Lenalidomide to something else.
I’m 59 and was first diagnosed late December 2018, just before Xmas.
Was on VDT for many months and light chain levels came down, but then stopped dropping and neuropathy in my fee was be3coming a real concern as I was told it could be irreversible- so my consultant got me onto Lenalidommide. We were really pleased as we had read great things but after 4 rounds ( I think) light chain levels started rising.
So now I am on 15 mg Idarubicin (Zavedos is the registered name), alongwith 20 mg Dex. I take it for 4 days only, and the dex. I also take anti sickness etc.
My Consultant said its not a drug that is often used these days as its been around for some time – but it is a very good drug. I think its a case of finding one that works for each individual metabolism. But is worries me being on a drug and that is older and been superseded by newer stuff. So far I have not experienced any adverse symptoms other than ‘hot feet and face’.
I cant help with the drug you’ve been put on, sorry, but good luck!