Hi Kayleigh, welcome to the Forum. I was diagnosed 20 months ago – a complete shock I’m 60 yes old. . Was helping husband on a property development,, digging drains etc. Thought I had Flu coming and had somehow bruised my rib, when the other side ribs started hurting too I went to GP. Admitted 2 days later, A week later I was on chemo! NHS at its best. ! It’s taken 20 months to get my light chains down low enough to make a Stem Cell Transplant viable. I had to have four different drug therapies, as each one seemed to stop working after a few months (VDT, Lenalidomide, Pomalidomide and something in the middle of those I can’t remember the name of). . I’m due to be admitted on Monday 7th for A Stem Cell Transplant, I’m having my own cells given back to me. Have only just started using this a Forum as I’ve been a bit in denial I think, and didn’t like reading about some of the bad things that have happened to some people. However, just recently I’ve found it really helpful, and I’m less worried about that SCT now. Good Luck with your journey and ask lots of questions of your nurse when you need to – or the Myloma help line. 😀
Hi Jillspikes mum
I’ve only just seen your message, so apologies for not answering immediately..like you, I didn’t always want to read the more upsetting stories on here, then I’d forget to check, etc etc. My brain is complete mush most days. And I get where you’re coming from, being able to doing everything to doing so little. And also thinking you’re actually reasonably fit!!
And now I’ve changed again, and can manage to read posts. Everyone is different, each MM journey is different. I’ve not started my chemo journey yet, hoping it is next week, and I may be different during that Process ….but like you, I keep on keeping on.
Let us know how your transplant has gone, when you feel up to it!
Take good care
Kayle
Hi Kayleigh, welcome to the Forum. I was diagnosed 20 months ago – a complete shock I’m 60 yes old. . Was helping husband on a property development,, digging drains etc. Thought I had Flu coming and had somehow bruised my rib, when the other side ribs started hurting too I went to GP. Admitted 2 days later, A week later I was on chemo! NHS at its best. ! It’s taken 20 months to get my light chains down low enough to make a Stem Cell Transplant viable. I had to have four different drug therapies, as each one seemed to stop working after a few months (VDT, Lenalidomide, Pomalidomide and something in the middle of those I can’t remember the name of). . I’m due to be admitted on Monday 7th for A Stem Cell Transplant, I’m having my own cells given back to me. Have only just started using this a Forum as I’ve been a bit in denial I think, and didn’t like reading about some of the bad things that have happened to some people. However, just recently I’ve found it really helpful, and I’m less worried about that SCT now. Good Luck with your journey and ask lots of questions of your nurse when you need to – or the Myloma help line. 😀
Hi Jillspikes mum
I’ve only just seen your message, so apologies for not answering immediately..like you, I didn’t always want to read the more upsetting stories on here, then I’d forget to check, etc etc. My brain is complete mush most days. And I get where you’re coming from, being able to doing everything to doing so little. And also thinking you’re actually reasonably fit!!
And now I’ve changed again, and can manage to read posts. Everyone is different, each MM journey is different. I’ve not started my chemo journey yet, hoping it is next week, and I may be different during that Process ….but like you, I keep on keeping on.
Let us know how your transplant has gone, when you feel up to it!
Take good care
Kayle