Hi Stephen – I’m a sflc myeloma so don’t have a protein level to work from but the light chains dropped very quickly over the first 3 months I was on Pomalidomide- they stayed around the same level for about a year and then have been slowly going up- My neutrophils were never very good but the rest of my blood counts were relatively stable. I hope you get a lot of time on it- it’s relatively straightforward and I’ve had a pretty good quality of life on it
Love Helen
Hi helen just started. 3rd cycle of ponilidomide. How did your protien go at the start. And was you’re bloods messed up. Many thanks
Hi Stephen – I’m a sflc myeloma so don’t have a protein level to work from but the light chains dropped very quickly over the first 3 months I was on Pomalidomide- they stayed around the same level for about a year and then have been slowly going up- My neutrophils were never very good but the rest of my blood counts were relatively stable. I hope you get a lot of time on it- it’s relatively straightforward and I’ve had a pretty good quality of life on it
Love Helen