Hi everyone,
I have BRONJ.
Just a line or two to say “Hang in there” …. life DOES go on despite the Osteonecrosis. It’s a good excuse for ice cream and chocolate which are just so soothing to eat. I have recently discovered the ideal toothbrush for me… which is a soft one by CORSODYL. It’s adult size as opposed to the children’s soft toothbrushes. Having quite a hole in my lower jaw, I get food stuck in a difficult place and also find the battery powered ORAL IRRIGATOR by Oral-B that my sister bought for me is invaluable. It squirts (warm) water through a jet at a choice of two different speeds. It’s all about avoiding infection, so I use an Anti-bacterial mouthwash every morning and night. Unfortunately it causes brown staining on teeth, but a sympathetic Dental Hygienist can clean it off CAREFULLY.
Hope this positive message can help someone.
I’m 5 years in since my diagnosis of both Lymphoma and Multiple Myeloma and subsequent Chemo/Stem Cell collection and Zometa.
I will be at Christies this Friday for bi-annual blood and urine tests.
best wishes,
Michael xx
