Hi Jan,

Well done.  Don’t be too hard on hubby! ….Good days/ bad days.

Those steroids are tough!

All went well at the hygienist today. I did explain the possible problems again, and she was most sympathetic and helpful, and subsequently very gentle.

Kind regards,

Michael

Hi Mavis,

Glad to hear that you find things funny… well done you!

I doubt if even the saddest person will be into BRONJ porn, so doubt if your photos will become viral :-))

I’m going to see the dental hygienist tomorrow for the first time since having my BRONJ. I have been super careful to notify them to be gentle.

I wonder if anyone knows…[Read more]

Hi Jan,

Sorry to  hear about your readings. I hope you are coping okay (have we a choice?)

very best wishes,

Michael

Hi,

It’s a damned nuisance having BRONJ, but at least we’re still here.

I have a full set of top dentures, and used to have partial bottom ones. Obviously, I cannot wear the bottom ones any more, as they would rub against the lower gum/bone.

I have some exposed bone, which has increased lately, bit my Maxillo specialist is leaving it be.

I did…[Read more]

Hiya lynda 1

Don’t despair. I have Multiple Myeloma and also Lymphoma.

I had chemotherapy and stem cells harvested in early 2014.

The skin on the soles of my feet just peeled of in sheets… quite alarming at the time. I REALLY struggled to walk… the podiatrist could do nothing to help as he said it was nerve damage. I took Gabapentin 300mg x…[Read more]

Hi,

Well, the maxillo facial specialist has confirmed that I do have Osteonecrosis of the jaw.

It has healed up very well following the operation I had to take a biopsy and generally clean up the excess bone growth on my lower gum. I am delighted to say that the CINDAMYCIN antibiotic has got rid of the infection that was causing pain.

I expect…[Read more]

Hi Jan,

Thank you very much for your reply and information. Sounds like you must have been one of the first in the UK to have the Zometa infusion.

I will certainly update when I receive the results from the biopsy.

Kind regards,

Michael

In my case, my lower dentures were becoming uncomfortable, so I visited my dentist to get new ones. He discovered “something” in the gum, and was due to extract it. Fortunately, my  wife reminded him of my ongoing treatment at Christies. He subsequently looked up Zometa to discover it was a Bisphosphonate, and decided not to touch it and referred…[Read more]