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• 28th February 2011 at 4:52 pm #89902
  
  nickinoo
  

  Participant

  Hi David,

  So pleased to hear that your results so far are very good, and disappointed for you that you are only on cloud 8 amd cloud 9 🙂

  Sam will be 16 weeks post transplant on wednesday and time has flown, his Myeloma wasnt the paraprotein type (if you know what I mean!) but he was told by his consultant last time that he was in a virtual complete remission pending his bone marrow results so we were over the moon with that.

  How are you feeling generally?

  Nicki xx

  28th February 2011 at 8:15 pm #89903
  
  Amelie
  

  Participant

  Hi David,

  2.2 after only 10 weeks is very good. Remember they can drop further down at least the next 4 months and as long as they are below 5 they are good!

  John is almost 6 months post sct and at his latest check (end January) it had dropped from 2.4 to 1.7. We are so happy!

  Did you ever get an answer regarding the blood versus the bone marrow test and response?

  All the best,
  Amelie

  5th March 2011 at 12:02 am #89904
  
  KWilson
  

  Participant

  Great progress, well done! Keep up the good work.

  xxxxx

  5th March 2011 at 5:35 pm #89905
  
  Perkymite
  

  Participant

  Hi Amelie,

  From what my consultant said Blood PP and Bone Marrow measurements are two distinct and separate measurements. They use Bone Marrow measurement early on to confirm the type of MM but after that, in my type IgG, they do not need to take Bone Marrow again, unless something dramatic happened where they thought my myeloma type had altered. There are some types of Myeloma where you need to use Bone Marrow but not in my case. Hope this sheds some light for you.

  Kindest regards
  David

  Just had a letter from my consultant informing me that I was right the creaking bones are old age and wear and nothing to do with Myeloma. Hip Hip……..

  5th March 2011 at 11:22 pm #89906
  
  KWilson
  

  Participant

  LOL, there's a sort of irony in being relieved to be told that we are 'just' old and creaky and finding that reassuring!

  Glad it was nothing more complicated.

  xxxxxxxxxxx

  14th May 2012 at 5:19 pm #89901
  
  CAZ1
  

  Participant

  Hi all,
  Just catching up with everyone! It's now 3 weeks since my Transplant. On Friday it will be my birthday and also my 1st month birthday! I've been at home just over a week and am feeling very weak – husband doing all the caring ( bit of a shock for him how much I need at present ) -however I can feel a slight improvement each day and the appetite is coming back very slowly.
  Only real problem I had was that our normal cancer ward with the isolation rooms is being upgraded so I had to go through the process on a 6 bedded ward.The Transplant itself was at Derriford in Plymouth and then returned by clean ambulance to my local hospital. I found it very difficult to cope surrounded by other patients with end of life treatment and associated other problems.As a nurse I couldn't help picking up all the nuances in conversations,as well as 2 infections needing Taxos treatment The whole thing made me feel very emotional.
  I am now on large doses of 2 antibiotics and need a Pentamidine nebulizer tomorrow.
  The choice that we made was not to delay the transplant as I was in serological remission,and to wait until after September when the ward is due to refinished could have put me in a different position. Anyway– all done now.I'm so glad to hear that others are out and about- gives me something to look forward to.
  I see my Consultant next week.I already know that my blood counts came up fast ( love my new stem cells,long may they work) and will catch up after.
  Thanks to you all foe continuing support
  Carol x

  14th May 2012 at 7:46 pm #89907
  
  tom
  

  Participant

  Hi Carol

  First I dont know how your post has got hidden in the middle of here Lol.

  And Second Welcome Home and I bet it feels strange? I know I did.
  You know now that your strenth will recover it might just take a Month or two.

  Keep strong and stay Fit.And long may the transplant work

  Love and Hugs

  Tom "Onwards and Upwards" xxx

  15th May 2012 at 10:50 am #89908
  
  CAZ1
  

  Participant

  Thanks Tom
  I don't know what happened and how my post got to the middle-gremlins in the system?
  Today feels better than yesterday even though I have to do the nebulizer at the Hosp this afternoon.Perhaps my cough might go as a result– we can only hope!
  Carpe Diem
  Carol x

  15th May 2012 at 10:57 am #89909
  
  TinaP
  

  Participant

  Hi
  Just reading your post gives me the encouragement I need. I'm on day 20 of the first 21 course. Still seems a long way to go, especially when I'm feeling 'down' after the Dex.

  I hope you continue to feel good.

  Love
  Tina

  15th May 2012 at 3:30 pm #89910
  
  tom
  

  Participant

  Hi Carol

  Yep Gremlins me thinks :-0 Plzd you feel better today and I hope the Nebz sorts you out better? saying that I have had a cough for years?? its the only way the young Bride can find me in a shop with the Cough Cough every now and then Lol.

  Tina I think all of us that have had the "Dex" :-0 there av wrote it Dex feel the same but it wont be long and is well worth the agro it gives you, Keep it up and stay strong

  Love to you Both

  Tom "Onwards and Upwards" xxx

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