I’ve just had cycle 20 after my first relapse. I am now in four-weekly Daratumumab maintenance post SCT (September 2021) after initial DVD pre transplant. I am in Complete Remission for both my Myeloma and AL Amyloidosis with light chains, paraprotein, Troponin and NT-ProBNP all ‘normal’. Side effects are not bad at all. Mild neuropathy. A couple of days of high fatigue and cold-like symptoms after injection. Obviously it does not work for everyone but it has been a welcome addition to the treatment range.
The continuing development of new MABs, Bi-MABs, CAR-T & other therapies offers hope to all as like so many I am being treated with a drug that was not even officially launched when I was first diagnosed. Myeloma UK do a great job supporting drug development (clinician support, clinical trial promotion etc.) & advocating for drug approvals so fingers crossed that the future continues to get brighter!