5 years today

This topic contains 1 reply, has 2 voices, and was last updated by  digreds 8 years, 2 months ago.

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  • 1st March 2016 at 12:47 am #127029

    sandydeli
    Participant

    Five years today I got called to my doctors surgery and given the news You’v got multiple myeloma What ??? As a lot of us on hear I’d never heard of it. Stem cell transplant in the September that year and been fairly ok since then a little blip just before Christmas when light chains started to rise but now seam ok. My main worry is the b…..d disability money that iv been getting since diagnosis was stopped this week as its changed to pip and have been told I do not make the points !!!!! I’m 60 in April that would have been ok if it wasn’t for this rotten government putting the age up too 67 that I probably will never make !!!! I’m going to appeal but it’s the stress that’s getting me down not just thinking every pain I get is it the myeloma back ? Now iv the worry will I have enough money to live on ?? Has anyone else had money stopped or any suggestions on the appeal. Thanks for reading Sandra.

    1st March 2016 at 2:25 pm #127035

    digreds
    Participant

    Hi Sandra,

    I’m new to this forum and this disease BUT..the specialist nurse at the hospital I am being treated at seemed to be pretty sure that as a newly diagnosed MM patient, I would be entitled to PIP payments. I have rung and requested the form, which the nurse said she would fill in for me? Perhaps speak to your specialist nurse and see what they suggest?

    Good luck

    Lorraine

     

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