How this all began, my MM journey so far.
Some time ago I was doing stuff as normal when suddenly I noticed pain in my lower joints. It became harder to walk, and when I eventually got round seeing a doc, my local GP, she said its likely vitamin D deficiency. That was a surprise but ok I’ll go with that. However it got worse and further blood tests revealed the truth. I was referred to a doctor in Hematology and when the results came in the doc was on the phone to another specialist and the word paraproteins popped up. At the time it meant nothing to me, but my partner Helen had researched it, and her face dropped when she heard the word. She knew what it was and that’s when I set out on a research mission, so I wasn’t going into this blind.
As soon as I discovered what I had we both researched the heck out of MM, not relying on google but rather any links to NHS sites, cancer sites etc. And I soon had a lot of info available at my disposal.
By the time I got a consultation with my doc (now sadly retiring) and he told us what it was, we were like, yea, we know. I even spouted back some of the names of the treatments and procedures. I expressed an interest in it, said the science behind it all is pretty cool. And it is. But that doesn’t make it any easier when it comes down to having the jabs. It just prepares you a little.
I will say now Do not rely on google or AI, word of mouth etc! ( Oh I know someone who’s friends cousin had that blah blah blah) Go straight to the horse. False information is worse than no information I think.
