Hello everyone. Many of you know John and you all know that he admits that he is not great with computers. He did want to post his personal story though, as he feels it will be of interest to many of you, so he asked if we could do it for him. I have not made any changes. John will be reading all replies. Ellen
I was diagnosed with MM 18 April 2012 after months of pain in my back shoulders
and ribs.
No energy had to stop playing football November 2011
January splitting logs all day building new sheep pen,
The pain must be from swinging that axe all day.
keep going son doctors say you've got A pulled mussel.
End of march PAIN get to hospital 1 30 AM tramadol send me home got a septic
tank to put in to day.
I will be ok.
17 April 11 30 ambulance this time they keep me in,
next day the bad news that's me …….down and out days of numbness follow
Offered to go on a trial of treatment end up with RCD 5 MONTHS worth.
Need to do this on my own people are blaming me for my attitude.
SCT In over Christmas never had so much love, out new years eave
In on my own so now infections.
Three weeks back to work and playing badminton.
100 days randomised with maintenance revlimid and vorinostat.
coz my treatment with revlimid to begin with had minor side effects
I think this is worth a chance.
I forgot to say I was in remission after the 100 days what type I don't really understand.
I am in weak one of my 5 cycle side effects slight neuropathy
And I am still in remission.
I do get slightly tired, no trouble sleeping.
I do worry about long term effects but I don't let it stop me enjoying my remission
and wonderful life.
mhnevill 10 years, 8 months ago.
