Hi Vicki
Really lovely to hear from you and you are doing well. The fundraising ball is great idea! Of course you still feel involved, it’s funny how we have never met yet have been there through the toughest of times together. My Mum had 2nd sct last

August and is doing good, apart from now having a virus which will not clear. That started…[Read more]

Hi Helen

I haven’t posted in a while, but just wanted to say hello. It’s really good to hear you are doing well. I’m sure that you are just like me mum, uncomplaining to family. They too will think of diagnosis day and look how far you have all come and grown closer. Here’s to the next 5 years and beyond….I expect nothing less 🙂 xx

Love Ali xx

Vicki
I’m so sorry to see this news. Sending you love and strength at this sad time.

Ali xx

Vicki
I can’t believe I am reading this,my
Heart goes out to you both. I am so sad that you have been given this news. Like Richard says, what about a donor? There’s nothing I can say or do but I am sending a big hug and love to you both.

Ali xx

Hi Helen

Apart from low back pain, she says she’s fine! No treatment at present and next appt April. Nice hat…how was the wedding? 🙂

Work day so got to get up.

Hi Vicki and Andy
Love Ali xx

Hi Andy

Fab-u-lows!!! Well done xx

Hey Vicky

I am so sorry to hear your news. You are right, its not easier to take 2nd or even 3rd time round. Did Colin have cyclophosphamide added to the velcade/Dex regime? ( I think that’s what Tom had ) I also know nothing about Bendumustine, so cannot offer any advice. But I can send my warmest wishes and a big hug to you both. Let the…[Read more]

Vicki. It’s me!
I’m never on here, today I found posts from The lovely Helen and now you!
So sorry Colins relapsed.
Got to get ready for work now but will fill you in later.

Love Ali xx

Hello Helen
I rarely visit the site now, but a mix up with the alarm leads me to the time to pop in.

I’m very sorry to hear about your Dad, must have been a huge shock.
Film festival? I have definitely missed something there!

My parents are selling up…they have already moved into new house with my Nana, proving to be quite stressful I’m…[Read more]

Hi,
My Mum also hated the curls! Don’t panic ladies it will soon be back in some sort of style. Keep having a little trim. Get rid of the ends. 7 months post sct and you should be close! Meanwhile, have you tried Argan oil in yiur hair? Just a little bit,seemed to relax the curls a little. Smells nice and gave Mum a sense of “doing her hair”.

Love Ali

Oh Eve
I am so sorry to hear your news of Slims passing. You both fought so hard against this disease. My love goes to you and your family

Alison x

Andy, marvelous news for you. Seems the regime is good for you. As David says …just keep going x

Hi Vicki

As you know we are going through the same thing. Started back on the rollercoaster, Mum just completed cycle 1 of Velcade/Dex.

I completely know how you feel 🙁

Any time you need to rant, feel free!

Love to you both

Alison x

Hi David,

Such wonderful news! I am thrilled for you. Fingers crossed for July.

Love Ali xx

Really pleased to hear it Helen! Tea at the Ritz , ooo I say! Its my 40th this year and im wondering what special treats I will be getting from my hubby, probably the usual last minute rush to Asda for pj’s, a book and a pack of 5 pants. One friend was whisked to Las Vegas and another got a range rover, so I would like something similar! Hehe,…[Read more]

Hi Helen

That really is a lovely picture. My Mum has the same problem!, she looks really well and you would never guess her diagnosis. Did you have a lovely birthday?

Love Ali x

Hi Helen, thankyou for that. Mum asked me to ask you! She doesn’t post on here, but knows I do, she sometimes has a peek also. She says the hair thing seems trivial, but you need to know these things :-).

Happy birthday! Hope you have had a lovely day xx

Hi Stanley

When do you start your treatment? My mums plasmacytoma is a fairly new thing,…[Read more]

Hi everyone

I wanted to wait until we got more facts before posting again. So, after the MDT meeting today they have decided that although pps remain stable at 4, bloods are ok and no more Myeloma cells in bone marrow that more treatment (velcade) is to start. The theory behind this is that there must be some kind of Myeloma activity going on…[Read more]

Hi,
So, its all confirmed. It IS a plasmacytoma. To be treated with 16 – 20 sessions of radiotherapy. Mums had bmb and waiting for result to see if Myeloma is active again. Should know some more on 19th. Mums pp levels are at 4 and all other bloods are ok. Mums also just had a full skeletal xray to see if any other damage.

We are hoping this…[Read more]

Oh Helen
I’m so sorry to hear your news. I cannot believe it and don’t quite know what to say. The medics will have a concoction lined up for you know doubt. Did you feel like you were relapsing? Or was it an unpleasant suprise?

Just look forward to your daughters wedding. Whats the date?

Sending you a big hug 🙂

Love Ali x