All food tastes horrible

This topic contains 8 replies, has 5 voices, and was last updated by  mhnevill 10 years, 7 months ago.

Viewing 9 posts - 1 through 9 (of 9 total)
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  • #115091

    basingunit
    Participant

    I was diagnosed with myeloma 18 months ago and all the time I was on CDT all food tasted very bitter, even chocolate!! Once the treatment had stopped things slowly started to improve and after 6 months was left with a metallic taste. Three months further on I’m now on Velcade and Dexamethasone and everything tastes really nasty again, has anyone got any helpful ideas?

    #115093

    jcr2468
    Participant

    Hi

    I had the same problem but found that the only things I could taste was “fruity” stuff. My specialist nurse suggested eating pinapple before a meal, its worth giving it a try but as with anything associated with Myeloma everyone is different.

    I finish Velcade and Dex about 2 months ago and my taste has now returned to normal.

    Good luck with your treatment

    #115161

    basingunit
    Participant

    Thanks jcr, I have just bought some pineapple and will give it a try.  I’m told frozen grapes might help as well.

    On another subject, the Dex has definitely made my arthritic fingers much less painful, every cloud has a silver lining.

    #115195

    mhnevill
    Participant

    Hi

    I had the same problem with CDT. The only things I really enjoyed were salt and vinegar monster munches. I, however, was glad of the resultant weight lose! Only sorry I have piled it back on again.

    Sorry you are having the same problem with your next regime. I am fortunate that I am still PP free so no more treatment yet.

    All best wishes.

    Mavis

    #115427

    basingunit
    Participant

    Hi Mavis,

    Thanks for that, I remember the only foods I were able to enjoy were pickled gherkins, I think the vinegar and saltiness helped the same as your salt and vinegar munchies.  Ice cream was ok as well!

    Take care

    Richard

    #115429

    janw
    Participant

    Hi,

    Like others, I remember it well losing my taste during CDT and it took about three months after chemotherapy before my taste buds eventually returned to their usual levels.

    My mother suffered from permanent loss of sense of smell and taste after a severe cold for over twenty years! She tried various remedies, joined discussion forums and participated in a local working group trying different options. She did find that taking a small amount of zinc supplement did help with an ad hoc return of her smell and taste, which she was more than happy to accept that on occasions she could taste and enjoy her food. She used to experience metallic/chemical tastes especially after eating red meat and found either very sweet, bitter and salty food could produce some tastes in her mouth, which is the same experience as others have commented on eating ice cream and salt/vinegar crisps. Also cold and frozen food can taste better than hot foods. Some people also state food tastes a little better with plastic utensils and glassware in order to reduce the metallic taste. You could also try some sugar free gum or some hard sweets to help reduce the metallic tastes in your mouth. I used mint chewing gum to help reduce the strange tastes.

    Apparently one of the many reasons why our bodies require zinc is for proper sense of taste and smell. However, I wouldn’t recommend taking zinc supplements whilst on chemotherapy or whilst taking other prescription drugs due to any possible interaction. Taking too much zinc can cause some serious side effects and be toxic to our bodies, with the Department of Health UK recommending no more than 25 mg be taken on a daily basis, including what we eat from daily products such as cereals, sea foods, red meat, whole grains, brewer’s yeast, etc. I know my mother used to experience “eye floaters” after taking zinc supplements for a long period, which stopped when she came off the zinc for some months.

    You also need to watch out for the wide range of different types and strengths of zinc supplements on the market with some prone to cause stomach problems as well as nausea and you usually need to take them with a protein meal rather than on an empty stomach. It’s a possible option to consider if your taste does not start to return after a couple of months after your chemotherapy has finished, but perhaps best if you discuss with your doctor first.

    Take care.
    Jan

    #115720

    Perkymite
    Participant

    I have had the taste problem since 2009. I found I could only really taste strong tasting food. I developed a passion for Peanut butter and raw Spanish onion sandwiches!

    I have now moved onto Revlimid and surprisingly went into remission after the 2 cycle, I have now done 9 cycles.

    My poison of choice has always been Guinness which I stopped drinking in 2010. Three weeks ago, whilst visiting my daughter my grandson offered me a Guinness and I thought I would give it a go and low and behold I found I could taste it just like the old days. Was I a happy bunny – you bet.

    Kindest regards – vasbyte

    David

    #115854

    basingunit
    Participant

    I’m glad to hear that you are able to enjoy Guinness again, there is light at the end of the tunnel.

    #116008

    mhnevill
    Participant

    Hi David

    Long may the Guinness taste good!!

    Keep strong.

    Mavis

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