[PhilipandfionaParticipant]

Sorry for the re-posting – I managed to delete/lose the first one, and thank you to Eve for her reply.

a little background. My husband was diagnosed April 2012 after snapping his femur. 4 cycles of CTD and an auto SCT in September lead to a complete remission. There were indicators for a good long remission period. Unfortunately 1 year on, the anniversary blood test showed 5% paraprotein and the BMB confirmed it. My husband is 47.
He is starting velcade this Friday. I am not entirely sure why they have decided to start so soon, I wonder if it is because he is otherwise healthy, so why wait?
We are waiting for a meeting to discuss options after the velcade, if we get a complete remission again. We understand that it may well be maintenance or allo SCT. Given that it came back relatively quickly after the auto SCT we may not have the option of other treatments.
Can someone help with telling us about life after an allo SCT? I think the doctors can tell us the risks of going through the treatment but we are more interested in what happens next?
my brain's a bit befuddled at the moment as I feel we've been completely sucker punched so any help, information or assistance, even in he the questions we need to ask would be really helpful.

Thank you

[ellenModerator]

I am sorry that your post hasn’t had any replies as yet. I think this is probably because allogeneic (allo) transplants are carried out fairly infrequently in myeloma and perhaps no one with experience of this has read your post.

My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I speak to lots of patients and families every day on the Freephone Myeloma Infoline, if it would help to talk to me then please do call the Infoline on 0800 980 3332, I will do my best to answer any questions that you have.

I can also put your husband in touch with another patient who has had an allo transplant on our PEER Network programme, on a one-to-one basis over the phone. I would be very happy to arrange this, if you think it would be suitable, please let me know.

With best wishes

Ellen

[PhilipandfionaParticipant]

Thank you Ellen, someone for him to talk to would be very helpful. How can I arrange this? Can you email
me directly?
Thank you x

[ellenModerator]

You can email me directly to askthenurse@myeloma.org.uk or call the Myeloma Infoline on 0800 980 3332 and I can set up a PEER call.

With best wishes

Ellen

[Author]

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