Anaemia

This topic contains 2 replies, has 2 voices, and was last updated by  jbal 3 years, 9 months ago.

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  • #141850

    jbal
    Participant

    Hi there. My husband had just started VTD following 5 years of being asymptomatic. Reason for staring treatment was anaemia. My question is his anaemia symptoms have worsened since starting treatment. Anybody else experienced similar? Has anybody had additional treatment to manage the anaemia whilst being on standard treatment?
    Thank you
    Jane

    #141879

    mulberry
    Participant

    I had anaemia at diagnosis (almost 3 years ago) and symptomatically it worsened during induction therapy. I felt dizzy when I bent down which severely compromised what I could do (even things like cooking). I had a SCT after which the dizziness went completely so that by day 60 I felt better than I had since before diagnosis. It’s only in the last c 6 months that my heamoglobin says I’m not anaemic, but I haven’t had symptoms other than a degree of fatigue, since SCT.

    #141880

    jbal
    Participant

    That’s encouraging to hear. Thank you so much
    Jane

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