Hi Ned, good to hear that you are doing well, as am I. I havent heard of maintenance being changed to thalidomide after 12 months, and this hasnt been recommended to me by my consultant, so I continue on lenalidomide, now 2 years. I would ring Myeloma UK to ask Ellen Watters, the nurse whether this is protocol, and to generally discuss.
Thank you Jane, your response was very helpful and informative as usual. I have another question if you don’t mind.
Before having first SCT, my plasma cell was 5% due to induction therapy. However, my oncologist didn’t prescribe bone marrow aspiration 3 months post SCT for me. When I requested separately from two oncologists, they said no need…[Read more]
I will check my blood test results and come back to you. In terms of length of time to take lenalidomide maintenance, this has been the subject of discussion between the experts. I think the latest idea is to continue it until progression, but their is an increased risk of additional cancers.