Thank you San,
I have suffered pain, confusion and one pig of a bedsore but to come throughout it with such a reduction in my Light Chains has made it all worthwhile. Perhaps the worst sort of suffering was the constant knowledge that if my Light Chains had frozen or worse still risen, then I would have been in limbo… looking around for something else while knowing that my best chance, a chance we hadn't considered until it came up in conversation, had gone with nothing to replace it. That waiting for the Free Light Chains Test results was purgatory… absolute agony, even though I refused to allow any dark clouds to gather. 😎
But away with such thoughts… I am in a good place, much better than I ever expected while under Bendamustine and so I will take this and look forward to the next 6 to 8 months and take it from there. 😀
Dai.
Perkymite 11 years, 4 months ago.
