Hi Rosary,
Starting locally, Myeloma UK runs events for patients and their families. Upcoming events are here:
Patient and family events
Upcoming ones are in Newcastle, Birmingham and Stirling.
The International Myeloma Foundation (despite being ‘international’ it seems to be pretty US-based) also has events, some of them patient oriented. For example, there is one in November in Chicago.
https://www.myeloma.org/news-events/multiple-myeloma-events
A couple of suggestions:
– I know that you say that you are happy to travel, but some events can be accessed online (live or recorded): easier, more convenient and cheaper.
– Being well informed is great, but there comes a point when doing so requires learning the jargon, instead of sticking to the patient-oriented events. It will make the networking better, and means that you can read medical research papers and form your own opinions on (for example) one treatment compared to another. I have been going through that learning curve, but I don’t pretend that it is complete. If you want to go down that route, I suggest searching for ‘myeloma’ on X. In terms of networking, you can easily then contact people online.
Regards
Rabbit
