Hi folks
Was just trying to get an insight into this treatment
Obviously trying not to use Dr Google USA
but personal experiences in the uk
Short story
Diagnosed April 25 treated with Dara/velcade and dex for seven months light chains dropped dramatically from 28000 to a few hundred. Then it stopped working.
Started on Belamtumab again numbers dropped to 19 !!! Then it stopped working .
Now told the Haemotolgist wants to try bi specifics? Not sure which one of the 3
My question is any of you good folks out there been on this and what’s the regime and side affects ? I know we’re all so different and won’t have the same problems but having read the pamphlets and myeloma sites I’m pretty terrified to even go to the consultation next week
Hope some one can help
David
BTW IM 74 and fairly fit at the moment
Thanks
