Hi Forest1,
I am one of the new forum volunteers and came across your post. I appreciate it was quite some time ago but thought that even if it isn’t applicable for your situation any ore, it may be helpful for others in similar situation as I’m sure many of us have been there.
My dad has MM and is currently going through his first relapse. He responded very badly to the first drug combo they put him on at relapse and, probably due to covid, it was very slow getting him on it in the first place so he was in pain for a long time and then had the bad side effects of the medication on top. After over a year of being in pain and having lost over a stone in weight not being able to keep his food down and having bad cramps and no appetite, he had quite understandably had enough. We spoke to his consultant who gave him some advice on his pain meds to try different dosages at different frequencies which helped a little and we tried to organise small family events to try and take his mind off the pain and made sure he had a rest and some pain meds beforehand so he could enjoy it as much as possible. It seemed to help. It is hard as you seem to be waiting all of the time – for treatment to start, the next set of results, meaningful improvements etc. and it is exhausting but just try to take one day at a time, keep his spirits lifted as much as possible and as the previous response said, just let him know you are there for him. I hope by now things have improved for you both and your dad’s MM is under control. Sending you all the best x