[MarybParticipant]

I am newly diagnosed, and about to start treatment fairly soon I think. I am being offered the opportunity to be part of a trial at Barts which I am quite apprehensive about. But leaving that aside, and knowing a little bit about Myeloma, my sister had it too, I know the drugs cause chronic constipation, I know there is lots of literature out there about it, but I would really welcome your thoughts, and advice what works what doesn't and how everyone else copes and deals with it. I think its something that can really affect quality of life and I am not quite sure that the medics really are that interested. What do you all think?
Mary B

[dickbParticipant]

Hi there, lightning does strike twice in the same place and it must be so hard for your relatives knowing that both and your sister have MM. As for constipation, I'm afraid it's part and parcel of the treatment. So far I have got away without using any medication for it. I do suffer a little but fortunately my rythm hasn't been so far out.

I put Linseed on my Meusli and found dried Apricots work. We have so many different things put into us that a naturel remedy is a nice alternative. I'm sure you've heard this loads of times but you need to drink a lot, I average 3 litres a day, some have double that. I am fortunate in that I have not had any Kidney damage so with me drinking is more to do with preventing rather than dealing with Kidney problems.

[MarybParticipant]

Many thanks for that it's very helpful Mary B

[tomParticipant]

Hi Mary

A warm welcome to you sorry you had to join us 🙁 May I ask how your sister is and how she copes/coped ?

As for me I was on CTD as a first line of treatment in 2009 and the Constipation was Bad if I forgot to take my Medicine for it :-S and that was "Strong Codanthramer" 10mls at nite and that worked wonders for me

Good Luck on your road to remission

Love Tom Onwards and Upwards x

[MarybParticipant]

Tom et al,
many many thanks to you all who have replied to both my posts. Its really reassuring to hear from people out there who are actually going through it.I'm sure in the future there are going to be lots of times I need you all.
I'm really impressed with the Forum and all the practical tips and advice that's out there. I know from past experience that although the medics are often very good in their own way, they haven't experienced it, and don't know the practicalities and realities of an illness and what little things can often make a big difference.

Tom in answer to your question, unfortunately my sister died earlier this year, unfortunately she had a stroke, and in the end nature took its course.

Mary B

[eveParticipant]

Hi Mary

Welcome as you know Chemo causes constipation with some people!!:'-(

The natural way would be prunes high fibre food,if it works great.
The medical way ,I think the best is Movical at least once a day if you can stomach it,it acts on the muscles ,the one thing you cannot afford is to get bunged up,this will make you feel very ill,and put you off eating and drinking,.

So prunes and other fruit fibre,All Bran made into a cake is good!!!,easy to do,All bran soaked over night in milk with fruit,eggs and flour added,cook comes out like a fruit loaf,last for a few days,better than a bowl of Bran any day,you can add honey if you like it sweet., 1 Movical a day uck>:-( .
Banana,s and apricots for potassium ,better than having to take a tablet for low potassium uuck:'-(

Ps All Bran cake freezes as well. Eve

[PerkymiteParticipant]

Hi Mary, Sorry you have had to join us. I suffer from constipation. Prunes and Laxido are my answer.

If I have not been for awhile I will eat 8 prunes on one day and four on consecutive days until I go, then I resort to the Laxido.

Kindest regards – vasbyte

David

[MarybParticipant]

Many thanks to all, anyone find lentils helpful?

Mary B

[Author]

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