Hi all
Would appreciate any help and advice or to hear other people’s experiences.
I was diagnosed with myeloma in Aug 23 following a couple of years of severe back pain. I had surgery to stabilise my spine and thankfully that has helped massively with pain but I still experience some discomfort and am unable to do some physical activity. I have responded well to all treatment and am nearly 2 years post SCT but I do seem to be experiencing more fatigue and brain fog these last few months. I’m 41 and have an 8 year old daughter so would love to be able to run and jump about with her or to go to a festival for the weekend with some mates but I feel like I need at least a day to recover from the slightest activity these days.
When I mention fatigue to my consultant he seems pretty confused as if fatigue isn’t something that should affect me. I think it’s because I’m relatively young to have myeloma but it is extremely frustrating to be faced with a bit of a brick wall with it. I’m in the middle of trying to change career and am planning to start a business in the next year or so and would really love to have enough energy to devote to it as is necessary. Any suggestions for managing fatigue? Should I down a Red Bull or drink an espresso every hour?
Also, when I mention anything to do with pain my consultant will not prescribe any medication. He eventually referred me to a back specialist who gave me an epidural but that has done little to help my pain and will have worn off by now. Other meds such as tramadol and gabapentin aren’t very effective either. Does anyone have any suggestions for effective pain relief?
I really appreciate you taking the time to read my post this far and if you have any advice about dealing with fatigue or pain or how to get through to consultants that are really nice but don’t seem to listen too well then please respond.
Many thanks
DWT
