Thank you for posting on our Discussion Forum, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that no one has replied to this post as yet. I hope you don’t mind if I make you aware of some potential sources of support which you may find helpful:
• Talk to someone. The Myeloma Infoline operates from Monday-Friday, 9am-5pm and is manned by Debbie, Jude and myself. We aim to provide information and support to anyone affected by myeloma, and we are also here as a listening ear. You can read more about the service here (the number is below): https://www.myeloma.org.uk/how-we-can-help/talk-to-someone/
• Meet others. We have a number of services where patients, carers and family members can meet with others who may have shared experiences and can be a source of support – this includes Myeloma Support Groups and Myeloma Patient and Family Infodays: https://www.myeloma.org.uk/how-we-can-help/meet-others/
• The Myeloma UK PEER programme enables you connect on a one-to-one basis with another person who is a myeloma patient. Connecting with someone else who may have some similar experience can be very supportive. Contact through this programme is usually arranged via a telephone call. You can read more about the programme here: https://www.myeloma.org.uk/peer-network/
• Do speak with your Clinical Nurse Specialist about other local sources of support. The CNS will be able to signpost to local services such as counselling and/or complementary therapies if you feel these might be helpful for you.
If you have any further questions, please feel free to email directly to email@example.com or alternatively if you would like to talk things through please call us on the Myeloma Infoline on 0800 980 3332.