[kellymcParticipant]

My dad is 70 and has just recently been diagnosed with very early stage one myeloma. He has also been diagnosed with a rare condition called diffuse plane xanthoma which causes yellow patches on his skin. Aside from this and having 13% paraproteins he is in good health and has no other symptoms. He is not receiving any treatment and is being monitored every 4 months. Does anyone else know of this skin condition as I have searched various websites and it is never mentioned when diagnosing multiple myeloma.

[PerkymiteParticipant]

I have been on this site since 2009 and I have never heard of diffuse plane xanthoma being mentioned. Whether it is anything to actually do with Myeloma I am not sure.

Kindest regards – vasbyte

David

[jmsmythParticipant]

Hi

I’m like David been on forum since 2006 and I have never heard do it either. If you phone or email Ellen or Maggie, the Myeloma nurses I’m sure they will be able to help you. Details on site.

Best wishes
Jean

[VickiParticipant]

Hi there

Sorry I have never heard of this either. Good news though that they caught your dad early and they can monitor him 🙂

Vicki and Colin x

[kellymcParticipant]

Thanks for your replies but diffuse plane xanthoma is definitely linked to multiple myeloma, although it is very rare!!! I have no real update regarding my dad but still find this whole situation very worrying and frightening. I worry about what will happen to him in the future. He is due to go back to the hospital next month to get his blood checked, so we are all hoping that there hasn’t been much change. It is hard to know what is going on as my dad does not like to talk about it. I have not seen the test results he received at the time of diagnosis so do not know what his levels are aside from the paraproteins I have already mentioned and that his bone marrow biopsy was 14%. I know this is very much an individual disease but if he were to start treatment, what would it entail? As this is such a rare cancer, are local hospitals able to treat it as well? I just worry that he may not receive the best care!!!

[kpParticipant]

Hi, I didn’t know anything about this either so looked it up and found this:
A rare form of histiocytosis.

Associated with an abnormal antibody in the blood called a paraprotein.

Lipid levels are normal.

About 50% will have a malignancy of the blood; usually multiple myeloma or leukaemia.

Presents with large flat reddish-yellow plaques over the face, neck, chest, buttocks and in skin folds (such as the armpits and groin).

So you are right, it is definitely linked. The site suggests they should resolve with treatment of the underlying causative condition. If not then surgery or locally destructive modalities??

I don’t know how you ensure you get the best care. All the advice seems to be to get a second opinion if you are concerned. The best monitor might be how your Dad feels after consultations and he can always speak to his GP.
Our NHS is still regarded as the best in the world. An article in the Guardian recently reported
“The NHS has been declared the best healthcare system by an international panel of experts who rated its care superior to countries which spend far more on health.”

Which I hope gives you confidence and helps to allay some of the fears all the negative political spin creates.

One of the words of advice I have read in this forum is to try not to spoil what you have today by worrying about tomorrow, and for some people the Myeloma remains at MGUS or Asymptomatic for years.

I hope your Dad keeps well

 

• This reply was modified 10 years, 8 months ago by  kp.

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