Diagnosed with MGUS

This topic contains 1 reply, has 2 voices, and was last updated by  mulberry 4 years, 2 months ago.

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  • #141415

    busymum67
    Participant

    Had diagnostic Tests over 12 months ago for kidney pain. This was when it was then that it was reported that I had multiple complex cysts and MGUS.
    I am awaiting cystoscopy due to ongoing blood in urine and pain. I have never had any follow up tests for MGUS. The numbers were IgG lambda 3.6g/l
    I don’t know whether I should be concerned or not
    Any help would be much appreciated
    Thankyou

    #141416

    mulberry
    Participant

    I’m sorry you have this worry.
    Although the chances of MGUS developing into myeloma are only 1% per year, rising amongst older people, but still to just 5% a year, it is a worry hanging over your head. And the reason for knowing is to have occasional blood tests to check that there is no evidence of a rise in paraproteins. Personally I would press for repeat tests just in case you have a variation called MGRS, monoclonal gammopathy of renal significance. It’s still unlikely, but I would want to rule it out. With these blood disorders we have to become advocates for ourselves and it takes a bit of getting used to. I hope your kidney issues resolve.

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