[millie500Participant]

Hi All just wondering if any other people  had been offered a second transplant even though there proteins where less than 2 as the hospital are offering me a donor transplant  as they think this is the best treatment plan any thoughts  thanks

[greg777Participant]

Hi Millie,

Not sure if it is the same but I have had what was called a tandem transplant – an auto SCT followed by an allo (donor) SCT about 3 months after. I had the donor SCT when I was in remission – I was told it would give me the longest possible remission.

it’s a tough process to go through – a donor transplant brings additional risks not present in an auto, so it’s something to think long and hard about. I went for it because I was relatively young (36) so I wanted to throw as much at it as I possibly could.

please feel free to ask any questions about it.

Greg

[millie500Participant]

hi Greg thanks for the information my name is Paul it sounds the same situation as me i had a level of 27 , 6 months chemo which came down to 1 then sct in October now they think that a auto now will give me the best chance Greg where did you have your treatment done

[greg777Participant]

Hi Paul,

Sorry about your name!

I was treated in Bristol and I cannot praise them highly enough – they seemed to know what they were doing.

I have the light chains myeloma so slightly different to yours (my PPs have never been high) but other than that the time frames seem very similar – diagnosed March 2015, auto SCT Oct 2015, allo SCT Feb 2016.

The procedures themselves are pretty much the same, I just had a much tougher post-transplant period with the allo – I got GvHD (which is the main risk). I was poorly for about 8 months. But I have recovered now and am feeling really well. Who knows if it’ll benefit me in the long run, but I’m glad I did it. But there are risks, so definitely worth taking your time to decide what is best for you.

Greg

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