This topic contains 14 replies, has 6 voices, and was last updated by
Amelie 14 years, 11 months ago.
My friend John who had a successful sct in the beginning of August is now suffering from an itching eczema on his body. It is very unlikely to be a side effect from the melphalan since it is less than one per thousand who experiences that. For a while the doctors thought it could be a side effect from the transplant itself, but now they don't know at all.
He is scratching himself all the night and can't sleep because of it. They gave him corticosteroid (prednisone) for 10 days, but it didn't help much. What to do? I am really worried – hopefully it isn't anything serious.
Hi Amelia
I am sorry to hear of John's problem.
Have you read the thread in one of the other forums about itching to see if any of it applies?
http://www.myeloma.org.uk/services/discussion-board/general/itching/
Thanks a lot for your reply!
He didn't get revlimid so far, but maybe the stuff could work anyway.
Has anyone an idea about what could have caused the itching?
Hello Amelie,
Sorry to come late to your question. I had an Auto. SCT 1st September. All went well and I have had few problems, either during or afterwards. That said, I did experience a significant all over rash, exceedingly dry skin and extreme itching starting around early October – about 6 weeks post transplant. Night-time was the worst, it being partnered by flushing and 'overheating'!
I thought it an allergic reaction to the Aciclovir anti-viral drugs (I am off all other medication). In consultation with my liaison nurse at the transplant centre and my GP, I tried Atarax antihistamine and 'Doublebase' moisturising gel. The rash cleared within a few days and the Doublebase is just wonderful – skin like a baby's bottom (almost!).
Towards the end of November I had my 3 month post SCT clinic. My consultant was of the opinion that the condition was exceedingly unlikely to be a reaction to the Aciclovir (which I had been on whilst in hospital) but, rather, a reaction to the transplant itself.
I discontinued the antihistamine and the rash has not reappeared, so I'm now convinced that this is what it was/is – the itching continues, albeit less than it was. The present cold weather will not have helped the dry skin of course and I am continuing to use the Doublebase.
I hope that this is a little reassuring to you and to John; at least you know that someone else in a similar position is scratching in sympathy! With any luck it will subside very soon but, if you haven't yet found it, I do recommend John tries Doublebase. Good luck with bringing it under control and with continuing progress post SCT.
best wishes,
Peter
Hi Peter,
Thank you so much for a very helpful reply – I will instantly recommend the antihistamine and Doublebase to John.
Good luck to you too!
All the best,
Amelie
Hi Amelie, I have two separate skin conditions. I am in the middle of a SCT and have developed itchy spots on my chest and back. They are going to do a skin biopsy on me when I am well enough. Secondly, I have had a small area on each ankle which is itchy and red (about the size of a half crown) this has been there since I was on CDT and I put it down as a partner of NP. However, whilst in hospital it has developed and is moving up my legs. The Dermatologist has given me Betnovate and this has stopped the itching. She says my skin is to dry and has given me a pot of Epaderm to rub into my legs once a day. I also have some small spots that have developed around my mouth for these I have Hydrocortisone cream.
Kindest regards
David
I had an auto SCT in September 2009. Since then I have had itchy skin which has been treated with Citrazine – an anti-hystamine. I am still taking them now, as i itch like crazy if I try to stop/ forget them. There is no rash and no broken skin, just itchyness.
On the subject of side issues, does anyone else have seemingly never-ending coughs and colds. I always seem to have something. Bah!
Hi David,
Thanks for your reply! I just read about Betnovate and one of the side effects should be itching??? Did they tell you about that? It seems strange.
Best regards,
Amelie
Thank you! Do you feel any side effects from Citrazine?
My friend has been lucky not to have any infections since his SCT. However it is bleeding when he is blowing his nose.
Hi Amelie its possible Johns platelets are low , which can cause bleeding A blood test will show whether this is the cause , probably best if he rings his team love Bridget x
Thank you Bridget, I will tell him to ask them.
Love Amelie
No side effects from the Citrazine. It helps a lot, but there is no comeback and I've been taking them for over a year.
Thank you! He is going to see his doctor next week, so I will tell him to ask for the Citrazine.
Okay, but the real name is Cetirizine Hydrochloride (10mg tablets).
I just looked at the packet to check.
Thanks again – you have been a great help!!!
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