[znabParticipant]

I haven’t posted in a very long time and have decided to start a new Elran thread – the other one was SUPER useful but I just want to know how it’s going for those who are on elran?
I’ve had my second full dose and the thing bothering me the most is the skin reaction 🙁
Not just the injection site which gets sore and dry but dry skin on my head, face, neck, torso. I was given a steroid cream but it’s made it worse (I will let my team know). If you did have a skin reaction, did it go away? What creams/body washes worked best?
Also, how is your day to day?
Thank you and wishing everyone all the best xxx

[sj2909Participant]

Hi

I realise it’s a month since you posted and I wonder how you are doing now? I started my treatment on Elranatamab the end of March and I Have had ongoing issues with skin reactions. First, it affected my upper torso and dried out my hands and feet. After a few weeks the rash on my body went but I have been left with very dry hands and feet, I use creams everyday just to keep it under control but if I stop it just gets worse to the point where my skin cracks.
After another cycle my legs reacted not as bad as before but they itched and I had blotches for about a month. In the last two weeks it has started on my scalp and my hair is dropping out. I have been chasing my consultant about it but cannot get a reply at the moment.
I have not been referred to anybody and do feel like I am being left to just accept the side effects. I tried antihistamine but it didn’t really seem to make any difference. I have read that maybe steroids are the answer so I will be pursuing this to see if it is recommended.
It seems such a minor thing to complain about when so many people are so ill on cancer treatments but it is something that wears you down.
I hope you are able to get some answers and if I manage to get any I will post on here.
Best of luck
Sarah

[znabParticipant]

Thank you for your response Sarah.
I hear you about being left to just accept the side effects!
Thankfully, my skin has stopped peeling. It’s still very dry and the texture of my skin has changed – less elastic?!
I continue to moisturise and oil my skin (it’s from my face to feet – my very dry flaky scalp has returned to normal).
I’m currently in week 1 of cycle 2. I feel that my body is tolerating it better and I feel that I have better energy.
I think that skin issues are a normal side effect (from what other have said in other forums) but the doctors/nurses aren’t too aware of it?!??!?!
All the best,
Zainab

[goffy1957Participant]

Hi every one
I am on the trial for Elranatamab and have have had the first 3 step up doses and one full dose so far
I did have a fever on the second and they gave me tocsilsumab and that fixed it pretty quick
My main reactions are very tired and the whole of my skin on hands and feet peeled off in sheets
The rest of my body is flaky and a bit itchy
Skin feels like the after affects of bad sunburn
I use QV cream and that helps and epimax for hands and feet peeled off
Next dose on 17th but I have a whole day of blood tests every half hour next week
Have to wait and see if I get any more reactions
Such fun this bloody disease
Take care

[sj2909Participant]

Hi. I have been on Elranatamab for 4 months now and I still have some issues with itchy skin, dry and flaking skin on one foot and the tips of my fingers cracking. I find if I don’t moisturise constantly then the dry skin comes back. I have been referred to a dermatologist so I have to wait for that appointment which I was referred for over a month ago but have not heard as yet. QV cream seems to be a standard prescription and I was told get cream with urea in. I bought a 40% one and it has worked quite well but, as I said, I have to keep applying it.

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