Hi kh0305
I haven’t personal experience of Blenrep but have spoken to a few other patients on it.
My understanding is that it is still only available as Compassionate Use, but is comparatively easy for consultants to obtain this way. My consultant is quite dismissive of it as his patients who have used it have had corneal ulcers which have affected their quality of life. However I met someone at a Myeloma UK Patient Information Day this year who has been on Blenrep for longer than any other drug, (I recall nearly 2 years?) and has found it the most benign myeloma drug ever taken. This patient has had intermittently itchy eyes, but most days has no visual problems and still drives. An ultra high risk friend of mine was on it for about 11 months until he became refractory. He didn’t have eye problems at all.
He’d had to wait several months to get Blenrep because his hospital didn’t have a nurse trained in the eye care /assessment that is necessary.
