[PatGParticipant]

Soo frustrated! I finished treatment last June (VCD) but am still suffering with peripheral neuropathy in hands and feet. I thought it would eventually go away but although much better still plagues me. Especially today when I am trying to do some alterations to dresses I have bought for my holiday. Anyone any experience in how long it takes to resolve please?

[HelenParticipant]

Hi Pat
Good to see you back. Can’t help here, I’m still very plagued by PN in hands and feet but am 5 months behind you, so I’m just hoping it settles down eventually. Mine is much worse when I’m very tired – I’ve noticed I’m very clumsy and can’t open jars and stuff.
Love Helen

[PatGParticipant]

Hi Helen,
It’s such a nuisance isn’t it? But to be honest I have been very lucky and the Amy is labelled ‘stable’ at the moment. The kidneys seem to be taking a bit of a bashing, but no treatment on the cards as yet so fingers crossed.
Although I haven’t posted for ages I have been following everyone’s journey and laughed and cried with the rest of the community. There are so many people having such a difficult time compared to me I sometimes feel a bit of a fraud. No doubt my time will come, but in the meantime I am very grateful that the powers that be have decided that that is not my journey at the moment. As Andy says ‘every day is a gift’ and I am loving the presents!
Love
Pat

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