Hi Rebecca,
I haven’t a clue what generally causes shortness of breath but in my case MM was diagnosed whilst in hospital with a very severe case of Pneumonia. I still have damage to my left lung and so consequently I have reduced lung capacity. The other thing to note is that MM can also affect the Heamoglobin levels in the blood and it’s that that carries oxygen around the body.
As for me, I am virtually treatment free, I go once a month for Zometa and a blood test. I stopped with pain killers in July after having 3 weeks rehabilitation that included a lot of Physio and sport. I stopped with the anti viral drugs and anti-biotics last month after my T4 cells reached over 200 per whatever measurement of blood it is. I still get a pain in my shoulders when doing fiddly things but I go swimming upto 3 times a week at the moment and still use the bike which certainly helps. My wife said she had noted that those who try and stay active through exercise or sport tend to suffer less. Obviously we accept that for a number, they just cannot be as active as they may like.
By the way John, sorry for Hijacking your post.
Richard