Willisboy

  • Willisboy replied to the topic it's back in the forum General 6 years, 11 months ago

    David,

    I wish you all the best for your treatment in the coming months.

    My Myeloma is in relapse too (diagnosed 2013 sct same year) I start on the Myeloma XII trial tomorrow with a second sct after this.

    Please keep us posted.

    God bless

    Graham

  • Noel,

    Treatments are getting better all of the time.

    My Myeloma was described as aggressive, I was diagnosed in March 2013. Received the SCT November 2013. Returned to work (part time) in June 2014 and will return to full hours in January.

    Keep being positive and remember those still in remission after 21 years.

    All the best

    God bless you

    Graham

  • John,

    Enjoy your TV!

    I am sure you will be around for many years to come. Thibk positive at all times.

    I was diagnosed March 2013, SCT November 2013, returned to work (part time) June 2014 and will return to full time work in the New Year.
    I am feeling fine.

    All the best

    God bless you

    Graham

  • Hello everyone,

    Sorry I have not been around for a long time. How the time flies.
    Over a year since my SCT and everything is going really well. I am in remission, the Doctor called it a plateau.

    I returned to work albeit on a part time basis in June. I shall return to full time hours in January.
    I see my Doctor again on Tuesday who I see every…[Read more]

  • Nick,

    I too wish you all the best with persuading your Mother to start the treatment.
    I was diagnosed with Myeloma at the age of 50 in March 2013. It did cause some bone damage and was described as aggressive as it was spreading. One Doctor told me that if I had been 65 then I probably would not have made it.

    But treatment for Myeloma is…[Read more]

  • I have just returned to work after 16 months off with Myeloma. I am in remission.
    I am 52 years old and I too plan to have many good years ahead of me.
    My advice is to be positive, lead as healthy lifestyle as possible and come to sites such as this for advice.
    As a previous post has said, be aware of some sites as their information is out of date…[Read more]

  • Willisboy replied to the topic New member in the forum Newcomers 10 years, 2 months ago

    Sarah,

    I am very sorry to hear of your husband being diagnosed with MM, especially at such a young age.

    I was diagnosed last March at the age of 50, and that is considered young for MM.

    My advice is to remain positive and plan for the future. I vowed to remain positive throughout mine, which I have apart from a few low periods.

    Just…[Read more]

  • Emma,

    I am doing very well thank you.

    I had a Autologous stem cell transplant, using my own stem cells.

    This was the one I was told was the best for me so this was the way I went.

    So far, at least, it has been successful.

    In the early days the other was mentioned but my Doctor decided early on to take the Autologous way.

    I know little of the…[Read more]

  • Willisboy posted a new activity comment 10 years, 3 months ago

    Izzie,

    The name Willis is my middle name. It was a name that had been in the family for generations, I got it at my Granddads request to keep the name in the family.
    I only had one daughter, so the name won’t carry on in the family unless my daughter has a son in the future (she is only 12 so that will be a long way off).

    The sleeping and lack…[Read more]

  • Dear Izzie,

    Happy New Year!

    When I was diagnosed in March 2013, I too started positive! I have remained so for the most part but there are times when my head would start to go down.
    It gets harder as time goes by.

    Just keep believing and working on it and you will always pick up again. I have been down that route myself.

    Don’t bottle things…[Read more]

    • Thankyou for your reply – where does the Willisboy come from as my name is Willis. I just feel that I need some get up and go – I managed to get to the hospital for my velcade yesterday came back late afternoon fell asleep until 6.30 went to bed and didn’t get up while 12.30!!! I don’t think I have ever felt as tired as this before – plus no…[Read more]

      • Izzie,

        The name Willis is my middle name. It was a name that had been in the family for generations, I got it at my Granddads request to keep the name in the family.
        I only had one daughter, so the name won’t carry on in the family unless my daughter has a son in the future (she is only 12 so that will be a long way off).

        The sleeping and lack…[Read more]

  • Willisboy posted a new activity comment 10 years, 3 months ago

    Lynne,

    I wish you all the very best for your stem cell transplant.

    My experience was that it wasn’t as bad as I feared it would be.

    Remain positive! It brings remission all the closer.

    Good luck and have a wonderful 2014 – you and your family.

    God bless you

    Graham

  • Willisboy replied to the topic Ian out of hospital in the forum General 10 years, 3 months ago

    Maureen and Ian,

    Hope you had a good Christmas and that the New Year will be good for the both of you.

    Please keep us updated.

    God bless you

    Graham

  • Thank you everyone!

    I am progressing okay. I still get little infections, I have had one for the last four days but am better today.

    I stopped taking the Morphine Sulphate tablets (pain killers) but my back is starting to ache again so I may have to go back on those.

    I next see my Doctor at the hospital on 7th January 2014.

    Hope you are all…[Read more]

    • Hi. I am going for my Stem Cell Transplant on 13th January 2014. Feeling a bit apprehensive now so it is good to hear all your stories. x

      • Lynne,

        I wish you all the very best for your stem cell transplant.

        My experience was that it wasn’t as bad as I feared it would be.

        Remain positive! It brings remission all the closer.

        Good luck and have a wonderful 2014 – you and your family.

        God bless you

        Graham