[angie2020Participant]

hi my name is Angela i am 51 years old ,i was diagnosed with m Myeloma on the 23rd of December 2011,i have had my cemotherapy treatment and now i start my injections for stem cell on the 25th August, I also have been told that i have to have a hip replacement as my myeloma has eaten most of the hip bone , i am very scared of going in hospital to have this done and would like to hear from anyone who has had this done thankyou xx

[HelenParticipant]

Hi Angela
Welcome, I've had a stem cell transplant so can tell you about that from my point of view, and there is much about them on the site which will give you a good idea about what to expect. I've not had a hip replacement but have looked after people with them and this is a specialist orthopaedic subject when it comes to myeloma.
Which do you want to know about and what can we help with first? The stem cell collections have been covered a lot recently with varying results for different people too, so it will help us a bit if we know which area of the country you live and you should get local knowledge too which is always a help.
Love Helen

[tomParticipant]

Hi Angela

And a warm welcome to you.

I havn't had a hip replaced but had a SCT in 2009 and doing great now so am sure you will get through it 😀

Love
Tom "Onwards and Upwards" xx

[angie2020Participant]

hi Helen thankyou for your reply, I live in Cheshire, i know quite a bit about the stem cell transplant as the doctors at the Liverpool royal have explained to me, i wanted to hear from people that had gone through it i think i need reassuring i know that every person will not be the same to how there body will take to the stem cell transplant. also the hip replacement i will be having in Birmingham , who have the myeloma bone specialist i have had a meeting with them but if the truth was known this operation is what is really concerning me . love angela x

[angie2020Participant]

hi Tom thankyou so much for your reply ,its nice to be reassured that the SCT works , its so nice to here from people who have myeloma, i thought it was not very common but since i have found this website now know it is quite common , i asked if there was any kind of group that i could go to but no one seemed to know i wish you good look that your SCT continues to work 🙂 love angela x

[VickiParticipant]

Hi angie,

Hope your SCT goes well. My partner was diagnosed in October 2011, and we have a date for SCT. Like you he and I am apprehensive, but the medical teams really do know their stuff. Colins first harvest failed so we are hoping this next go works…..re your hip replacement not sure how it works when myeloma is involved but my uncle, who does not have myeloma, did have a hip replacement and whilst it was painful for a while during recovery it has now given him a new lease of life……so once the mm is under control you'll be leaping about in no time. 🙂

Vicki and Colin

[tomParticipant]

Hi Angela

Your welcome and I should add that it was all pain free (cept the BMB) cant recall any pain with all other bits. but it is a bit uphill to fight it during SCT but you will do it as I said mine 09 and now drug free 😎 that tells me it was/is well worth it

Love
Tom "Onwards and Upwards" xx

[AliParticipant]

Hi Angela

Welcome! My mum (aged 58) has been home from hospital for 4 days now since having her SCT, shes really tired but very relieved its over! Its a major hurdle to jump, but shes done it and so will you!

Good luck with everything 🙂

Love Alison x

[mhnevillParticipant]

Hi Angela

Sorry you have had to join our "merry" band and that you are having to cope with a hip replacement as well as MM.

I have had four hip replacement operations! I had an infected hip so had to have one replacement in two stages!! It is a very straight forward operation. I had all mine by epidural which isn't half as frightenining as you'd think. If you'd like to ask any specific questions about the hip op or follow up, do feel free to email me on mh.nevill@btinternet.com or ring me on 01274 813584.

In any case, all best wishes for your SCT. I have just finishes six rounds of CDT but am not having SCT.

All best wishes.

Mavis x

[HelenParticipant]

Hi Angela
I'm glad Mavis was able to tell you about hip replacement first hand, as I've only looked after people with them. Once the SCT is over and you have recovered, the hip replacement should be straightforward, the damaged section is removed and you should have a pain free joint without loss of height. Many of the patients I looked after found that the pain from the operation was not too bad because the pain or joint limitation they had beforehand was so bad. I hope it all goes well for you and the next stage of your journey is without incident
Love Helen

[jackspratParticipant]

Hello Angela

I am Jacqui, aged 52 and diagnosed with MM in November 2011. We are very similar in our situation as on diagnosis I presented with a fractured hip. I immediately had an operation where a pin was put in my right leg to support the hip. All quite straight forward but I appreciate is was not a hip replacement so not quite the same as you.

My treatment so far has been CTD for 4 months at which time I had achieved a complete remission. That was at the end of April and then on 18th May I had my Stem Cell Transplant. Ok, so it was pretty tough at times, but I had been told that and was glad that someone was honest with me, as when I was at my lowest I knew it was normal and that things would improve.

I am now pretty much over it and getting on with life almost as normal but get tired at the end of days that are busy. SCT already seems like a long time ago and I am returning to work on 3rd September so that's all good.

Jacqui

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