Good news… Velcade 7 & 8

This topic contains 23 replies, has 17 voices, and was last updated by  cw1985 13 years, 1 month ago.

Viewing 9 posts - 16 through 24 (of 24 total)
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  • #98272

    DaiCro
    Participant

    Thank you Sharon and I wish you all the best with your results… I hope you achieve the CR bracket and 0 across the board if possible.

    A question – if you finish C8 tomorrow then why do you have to wait until mid-November? The longest I have had to wait is 2 weeks. Eve & Slim have also had these long gaps between treatment and results and it is beyond my understanding as to the reasons why. Have they given you any?

    As to being glad to finish Velcade I am in total agreement… it took me down, making me feel physically and mentally exhausted… no nausea, no pain (excepting the PN which they tried to help by lowering my dosage a couple of times) but it was… gruelling… that's the word that fits my experience best.

    Best wishes and congratulations on your freedom from the Cycles. 🙂

    Dai

    #98273

    maryandteresa
    Participant

    Yee Ha! So pleased to read this post Dai. No treatment = good times! Enjoy every minute of it. Mary x

    #98274

    DaiCro
    Participant

    Thank you Mary,

    Please pass on my best wishes to Theresa and your family.

    I often think of Patrick, remembering when we were both having our SCT's and exchanging news and views via Theresa. The Cheltenham Festival was on at the time and I was aware that your Dad enjoyed the racing, so I studied the form via the internet and had a few small bets. I didn't win much but it took my mind off the SCT for a short while and I genuinely enjoyed the festival. I was so pleased when I heard he was back on his bike and devastated when the news broke of his quick relapse at the time of his trip home to Ireland.

    I'm not saying that I feel guilty… but I do get a sometimes overwhelming sense of unfairness… that some of us got the chance to fight for our small freedoms while others were denied. It makes me both sad and extraordinarily grateful for my good fortune at the same time.

    I would love to meet you all at some time – perhaps at a music session in or around Chesterfield? I know that there are musicians in the family, perhaps we could arrange a concert/fundraiser?

    With my fondest regards.

    Dai.

    #98275

    BADGER
    Participant

    well done dia
    u
    I know you would do it and not give up I will be praying for you to have reaaaaaalllyy!!! long remmission

    Big ((((HuGS))))));-)

    lOVE jO XX

    #98276

    gina45
    Participant

    Thats brilliant news dai, its always good to hear something positive. you enjoy your 6 weeks break, and here is to a long remission .
    Gina x

    #98280

    cw1985
    Participant

    aww Dai thats such awesome news i'm so happy to hear good things are on your path! keep us posted on what you get up to on ur gallivanting!!

    christin xx

    #98277

    DaiCro
    Participant

    Hi Christin,

    A few days to get my bearings quickly followed by a chill which has turned into an upper repiratory tract infection… out with the Velcade in with the Amoxicillin.

    Ah well…:-)

    Dai.

    #98278

    maryandteresa
    Participant

    Hope your're feeling OK Dai – if it's not one thing it's another eh! Typical. Theresa and I would love to meet up with you sometime and happy to meet somewhere near you if that's easier. At the moment I am fundraising for my sky dive (cancelled due to bad weather it is rescheduled for 5 Nov (gulp!)) but if you organise anything, musical or not, I would be happy to help out if I can! Keep on the antibiotices and keep smiling. Mary X

    #98279

    tom
    Participant

    Hi Dai

    Sorry for the delay :-S not sure how I missed this post?? But a Well Done 😀

    Am sure the Amoxicillin will throw that dreaded infection out 😉 so it will be an "Onwards and Upwards"

    Tom "Onwards and Upwards"

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