[thejollynorthernerParticipant]

Hi

The Dexamethazone had its way with me lol. 41 hours wide awake, hiccups and raging thirst.

Had 2nd chemo yesterday just one injection.

My real problem is the pain.
To be honest my GPs are useless.
60ml of oramorph a day 8 paracetamol do nothing so GP prescribed Zomorph 10mg 2 x 2 a day stillr nothing.d
Hospital told me my doctor should ring me after a week to check. Contacted doctors and no such call has been booked !
Not surprised really.
Seriously thinking.of lodging a formal complaint against them as this is doing nothing to assist my mental health.

Say Hi to your dad

Dave

[mulberryParticipant]

Hi Dave
I think we all learn that we greatly benefit from advocating on our own behalf, and if our gut feeling is that something is wrong, or something needs to be done, then we are usually right.
Sometimes you just need to make a fuss, the squeaky wheel gets the oil and all that.
There is no reason to put up with pain that isn’t getting better. Shout loudly!
Jane

[kh0305Moderator]

Hi Dave,
Ah the joys of the steroids! They’re a nightmare aren’t they? The not sleeping is horrendous bless you.
Sorry to hear the increased pain medication isn’t helping. I completely agree with Jane that you should definitely keep pushing it until you get some relief. The message to us from the medical team has always been don’t put up with side effects/try and soldier on so make a fuss until you get something that helps.
Off to see dad this afternoon so will pass on your regards.
Have a good weekend and hopefully a good lie in! xx

[Author]

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