[FadiaParticipant]

Hi Terry,
Great to hear your shoulder pain was just normal 'life's twinges'and you are still in the watch and wait group. I want to stay in the watch and wait group for as long as possible too if I can. I don't know why it is taking so long to see the specialist, even my general heomo doctor is surprised he said it usually takes 2-3 weeks, so he is also chasing it up this week for me. Maybe it has just been lost or delayed in transit for some reason. However, the positive to come out of this delay is that I now have 3 consecutive blood test results showing my heomo level going up. So very strong evidence that my red blood cells are not being so outnumbered as the doctor thought a few weeks ago ! They are holding their own at the moment so I am trying to get on with the usual things in my life while I can. I will keep you posted and thanks for being there, it's lovely to know someone can empathise with my situation, it really means a lot.
Fadia

[teds31Participant]

Hi just been reading this post for the first time, sorry I missed it. I was diagnosed with smoldering myeloma about 5yrs ago and they have kept a close eye on me ever since ,I go every 3 months or so ,to the myeloma clinic sit there for 3hrs and then they say OK go home come back in 3mths. Its very stressfull ,I understand that its not as bad as people that actually have treatment ,but its the stress that is upsetting.I am at the moment having back pain and I dont know if its MM or just a bit too much gardening, it has gone on for a few weeks so Ive made an appointment to see my GP next week.Well thanks for letting me have a moan its difficult to do so with family,I hope both of you keep well and keep writing. Ted

[eveParticipant]

Hi Ted
How are you doing its a long time since I have seen post from you,one minute you are going on holiday,then no Ted about.:-)

I hope you remain in smouldering for many years,Love Eve

[teds31Participant]

Hi Eve, nice to hear from you,I do come on here regularly just to read bits but I dont post unless I have some thing to say. I was just having a bit of a moan,as the back is playing up something awful, dont know if its MM or just a bad back so I have waited a while to see what happens ,well it aint got no better so I will see my GP.I was following Terry and Fadias chat and they seemed relevent to mine so I thought I would join in,interesting to hear news from another part of the world especially US,it gives us news of whats new because a lot of new research comes via the US.This horrible MM MM is fairly rare and the smoldering kind even rarer, so information is difficult to come by, and when to start treatment just seems to be on the whim of a consultant,so it just depends on when he thinks it should start. As for holidays we went yesterday and paid for our latest ,we go on a coach tour down south in the middle of May, hope the weather changes for the better.There you are you have got me talking and now I cant stop:-D Good luck to all. Ted

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