[JaneParticipant]

Hello, I am new to the forum although Myeloma UK has been helping me with all the wonderful brochures etc.
I was first diagnosed 6 years ago with a Plasmacytoma on my 7th left rib. I had both the tumour and rib removed. I had no more symptoms until 2010 when I was admitted to hospital with excruciating back pain. I had a heavy dose of Radiotherapy which helped but left me with a bad burn on my back.
I was then treated with 6 months of CDT on a rolling 28 day cycle ….not the most fun!!
At present I am having Pamindronate every 4 weeks to protect my bones and regular blood transfusions.
I am happy not to be having chemo at present, but unfortunately have hardly any energy which gets me down.I am 71.
I am looking forward to meeting everyone on the forum. Best wishes Jane

[tomParticipant]

Hello Jane

A warm welcome is extended to you and I wish you good luck for your ongoing trip with MM.

I also was on CDT as my first Line of treatment then had SCT and Zometa Infusion every four weeks for my Bones.

Hope to hear more from you soon

Love
Tom "Onwards and Upwards" xx

[andygParticipant]

Hi Jane.
Welcome to the forum. You will find lots of support and advice here. Good luck with your treatment and your fight against MM. I myself was diagnosed Oct2011 and have had my ups and downs with my battle with MM. It's important to listen to your body and if your feeling tired rest up.

Take care.
Andy xx

[VickiParticipant]

Hi Jane,

Welcome.:-) My partner Colin was diagnosed on October 2011. He is on slightly different treatment to you but as many others have said it is a very individual condition and lots of variations on the treatment style. With very best wishes, keep focussed and your chin up. All will be well, it's just a bit of a rocky road.

Vicki

[ElizellenParticipant]

Welcome to the forum, Jane!

What part of the country are you in?

Eliz (in Bournemouth)

[PerkymiteParticipant]

Hi Jane, Welcome. Reading your post you seem to be an old hand :-/ , that is with Myeloma of course.

Kindest regards – vasbyte

David

[JaneParticipant]

Many thanks to everyone for your kind welcoming words.

Eliz, I live on the Wirral, Cheshire.

Best wishes Jane

[eveParticipant]

Hi Jane

Welcome to the site I am doing catch up,I loose track of what is going on,that,s why I am late welcoming you.

You sound if you have been through the mill a bit,i take it that you did not have a SCT because of age,and treatment that you have already had.

It takes awhile for energy levels to return after CDT,my husband had it then had to go on to Velcade which he found better and it did the job,he was able to go on to have SCT,but he is back to being so tired again,I believe it can take months for your energy to return.

So be kind to your self and enjoy the summer when it comes:-S

You live in a nice place in the Wirral,I lived in Liverpool many moons ago and now live in kent we get a lot more sunshine than you.Eve

[JaneParticipant]

Hi Eve,
Thanks for your kind welcome. I hope your husband is feeling less tired now.

I am really looking forward to resting outside in the sun, but, when will it happen?:-S

I keep smilimg.

Best wishes Jane

[DaiCroParticipant]

Hi Jane,

Welcome to the forum… if not to the reason for its existence.

CDT is not much fun but I always have a good word for it because it worked very well for me. Like any treatment that includes active chemotherapy your body goes through the mill but if the end result is good then it has been worth it.

I wish you well in all your treatments, processes and procedures and look forward to sharing advices, experiences and small humanities with you in the future.

Regards:-)

Dai.

[eveParticipant]

Hi Jane

You will have to go out and buy yourself a big floppy hat and factor 50 sun cream,lol. My brother who lives on the Wirral told me you actually had some sunshine the other,but you know what these scousers are like,all talk.:-)

Slims eating better,so he has a little bit more energy,its hard work for him as he has no taste buds left,so he has a nagging wife on his hands.Love Eve

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