Maureen, I’m so very sorry to hear this. I know you both fought this so hard. And you’ve given so much support and encouragement to those of us also fighting over the last few years. Please take care of yourself and know I’m thinking of you.
Hi Maureen, so sorry to hear of Ian’s passing. You helped him throughout it all and right up to the end and no-one can ask for more from a partner. I hope the rest of your life is filled with happiness, laughter, adventures and peace. I already get the feeling you realise living is a privilege that musn’t be wasted so I know you’ll be okay.
Thank you all for your condolences. Ian fought hard but in the end his kidneys were failing because of the myeloma. I also fought so hard for treatments for him and would advise anyone to go to a hospital where they have a myeloma specialist as we didn’t and often had to get a second opinion. He had a lovely funeral and he wrote his own eulogy. There was a huge turnout as he was a much liked and loved man.
I will miss him so much, he was a kind and loving husband but I will get back out there and live as Ian wanted me to do. Trying to remember all the good times we had.
Maureen, I am so so sorry to hear the sad news about your husband. I was following your story and felt your love and your pain. Thankyou for sharing your struggle as it does help others. My mum is on cycle 3 of velcade/ dex but yesterday her kidney function wasn’t good. It is such a rollercoaster and with Christmas looming I am so worried when things might go wrong again. We have had days where we thought it was over, my dad flipped with too many visitors etc so I know how you felt. The pressure on me caring for them and working at the same time and my brother not wanting to face it is so difficult and causing strain. I understand he doesn’t need to do mums intimate care but the appointments, cooking, sorting the hundreds of tablets is so difficult. ( dad not able to do things and mum was caring for him before this diagnosis in sept) just don’t want any regrets and turning twice weekly hospital visits into a chance to have a coffee and cake and a laugh when we can although inside it is hear wrenching. Mum wants to see my children get married ! I feel so sad every time she says this is why she needs to fight it as don’t think it’s going to happen. My son planning on next year and my daughter not engaged yet . my thoughts are with you x