Hi Jo
Lovely to hear from you.
I miss the holidays as well,but it is out of the question here as well,I did think about trying to book a break in bournmouth at the hotel for cancer patients it’s something to do with the Mac Milan site,but it’s not the sought of holiday Slim wants,in his mind he thinks we can still go in are Motor Home,but with him not being able to do much,the hard work falls on me,so no holiday.
Yesterday Slims first appointment was 8.50,this involved a 6am start,we arrived at the hospital at 8.30,but nothing went to plan,Slim was drained and so tired and angry,we were told the Velcade had no chance of being up until after 11.30!!!!,when you rush to keep the appointment time and you sit there for hours it’s wearing,any way,we now will go in for 2pm,we just came home yesterday and went to bed,hence this posting at 1 am.
I am looking forward to my daughter coming back from NZ,the whole family have been so busy lately,we have not had time to catch up,so this will be good,Kent looks lovely this time of year with the blossom and fields of rape,just waiting for the blue bells!!its the smell I love,it all lifts the spirit after winter.
Your poor arms must be black and blue!!!!, are they expecting your kidneys to recover,and are you limited on your fluids!!!,with all this you are wondering how I am!!! I know you have your faith which must hold everything together,the only thing I feel is tiredness,but I know given time I will recover from that.
I agree with you the changers on the site I have not liked them,so like you tend not to post,plus we are old hands now in the Myeloma Bubble,this site is about hope but at Slims stage it’s about buying time,loosing Dai was a big one for me.i am going to send you a personal message Jo,through Myeloma UK. Love Eve
