[johnandjunediamondParticipant]

hi joe.
must be a donny lad by the sound’s of thing’s,
let the doctors worry about the bone stuff joe,meanwhile do all you can to protect and care for your kidney’s,plenty of water……doncaster are not that good at giving out info,but press them for regular printed info such as blood result’s,and do try to write down any verbal info you get,a diary is a good start. best regard’s,john.

[rebeccaRParticipant]

Hi Joe,
don’t worry about the SCT it tends to not be as bad you imagined and perfectly do-able – as you know everyone will have different reactions but remember its only a short space of time in hospital. I had mine 9 weeks ago (am just 52) the SCt was OK but suffered 2 illnesses when I got home which floored me but thought I would post to tell you 9 weeks on no tiredness whatsoever up at 7am doing my daughters paper round and going to bed at 11ish fitness levels all but restored – power walking a few miles a day etc and am going back to playing tennis in a couple of weeks. I don’t know if it has worked yet ( I have poor cytogenics) but for a few weeks “out of the norm” regardless it was worth the gamble and I won’t be plagued with “what ifs”. I read a post today and the guy said if you act ill you will feel ill and I believe this to be true you need a positive mental attitude and huge desire to get back to normal ASAP – I’m sure most of us has this tho’ as it impacts on the whole family when you don’t act well and you can almost feel the relief when you take the steps to get back to normality – that’s why I’m back helping on the paper round etc so we all all get back to normal – or as normal as it will ever be again.
Good luck and go in fighting, Rebecca

[Ang287Participant]

Hi Jo
My husband had fractures in his spine and it took from January to May last year to diagnose. He had six months of chemo on the Myeloma XI trial and is currently in hospital for his stem cell transplant. He had his Melphalan a week last Wednesday and the stem cells returned the following day. It is now 8 days since the stem cells returned and up until yesterday he was managing fine but now having a couple of bad days but I am hoping that from tomorrow onwards he will start getting better and maybe be home for next weekend. My husband said he really had no choice in the matter if this gave him a better chance of a longer remission so he was happy to go ahead with it even though he has always had a phobia of hospitals. All of the staff involved at two hospitals he goes to have been brilliant and everything is explained so well in stages. The time has flown since diagnosis and we are hoping for a much better year this year once he starts to improve and a very long remission. Even now my husband said nothing could compare with the immense pain he was suffering for months early last year before his diagnosis and trying to do the physio exercises he was told to do. Good luck with your treatment.
Angela

• This reply was modified 10 years, 9 months ago by  Ang287.

[rebeccaRParticipant]

Hi Joe, as I originate from Doncaster and am there quite a lot during my time off recuperating I have sent you a private e-mail – which you will find when you go into Your Accouunt.

~Rebecca

[VickiParticipant]

Hi joe

Just wanting to wish you all the best. My partner Colin was diagnosed age 56 in 2011. It was a real bolt out of the blue! He has had the sct in November 2012 and is in complete remission, we were absolutely scared out of our minds but the medical teams are wonderful and really look after you. On e the sct gets started there’s no where to go, it was hard for Colin obviously in so many ways of course and difficult for me as the supporter to keep that stiff upper lip when all you want to do is make it go away!

But we are where we are and hope it continues. Best of luck to you. We are told by our consultant that there are many many new drugs that are used to keep this condition at bay too,

Vicki and Colin x

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