oh eve,i am so sorry my thoughts are with you, it’s so hard to understand this existance and it’s ceasless attacks on our sanity,the coming mths will be testing as each emotion is trialed to extreme, but i know you are strong and slim wouldnt wish you sadness. take your time love ok!

sorry to here your sad news sarah,
my thought’s and wishe’s for the day’s ahead, the strength will come.
best regard’s,john.

dont worry pat, all will work itself out you concentrate on yourself and stay well!
you could also write down the basics in plain english…..like washing machine settings,
oven setting’s/ basic cooking instructions like potato’s and veg instructions and time’s.
we men all claim to know nothing ( but that’s idolitas )it’s amazing what we pick up…[Read more]

hello anita,
amyloidosis is a very rare desease,and you may feel a little isolated in regard’s to
reply’s to your question’s.
there is a ( amyloidosis support group uk ) you could search but it is not as up to date
as it should be, but again down to the rarety of this desease.
however if you scroll part way down the page you will find a short…[Read more]

hi joe.
must be a donny lad by the sound’s of thing’s,
let the doctors worry about the bone stuff joe,meanwhile do all you can to protect and care for your kidney’s,plenty of water……doncaster are not that good at giving out info,but press them for regular printed info such as blood result’s,and do try to write down any verbal info you get,a…[Read more]

welcome wendy,
as richard rightly said,it’s not the time to panic,you need to consider what question’s you might need an answer to when you meet your consultant,
ask about your liver & kidney function and anything else on your mind
write them clearly in order and dont allow yourself to forget to ask them all…most can be answered by thier…[Read more]

welcome nikki & kev,
sorry but im cluless ref:- IGM myeloma so cant help you there,you will find that you will get less reply’s when you have a rare & or complicated form of the desease or related condition,please dont be offended it’s just that people tend not to reply if they feel they cannot directly contribute in a positive way.
but you will…[Read more]

my thought’s are with you san,……sorry for your loss.

hi,chris.
basicly what that mean’s is that you carry the desease,if you are very lucky it
may never evolve into mm.
if not then you at least have the advantage of being in the best possible position to gain quick control,for the time being try not to get too obsessed with it….but do please read thru the forum ( including the tv/video section…[Read more]