[charlielouiseParticipant]

hi my nan has just been diagnosed with stage 3 multiple myeloma after nearly a year of going to her gp, we have had a over load of information given to us by her consultant but she did recommend this site which i have found really helpful. Her consultant has told us there are 3 stages to this cancer but with my nans tests results from her bone marrow she said it was more like a stage 3 plus, i will be looking after her and really don't know what to expect i've been in the caring field for many years but i know looking after a loved one is going to be hard especially when she has so many questions that i just cant answer.

[ali49Participant]

Hi Charlielouise,
this site is a brilliant place to meet people in similar situations and get support. You must be feeling totally overwhelmed at present but you will find that it gets easier to cope once all the information begins to 'gel' How lovely for your nan that you can look after her, that will be a great help I'm sure.

As for questions, the members of this forum have loads of advice and the specialist nurses on the help line are brilliant. I hope that your Nan gets some prompt treatment and that she does well.

Welcome to this funny life,

Alison

[charlielouiseParticipant]

hi Alison
it really is overwhelming at the minute we go Friday to find out if treatment is helping so fingers crossed,my nan has always been like a mum bringing me up etc so i couldn't imagine someone else looking after her 🙂 regarding the questions my nan asks some are very upsetting so i feel like i cant ask anyone especially her consultant as my nan is always in the room!

[ali49Participant]

I guess you could take a notebook and write down things you would like to ask and try to find out later.

I don't know what other people think but I believe it may be harder to be the carer than the one who is ill. I have MM and am fortunate to feel better than my blood results suggest but I know my family and friends worry about me a lot.

[CarolBradley1Participant]

Hi
Just wanted to welcome you to the site although I am so sorry that you have had to find us because of bad news about your nan.
She is so lucky to have you and I get the feeling that once you have had time to absorb some of the shock you are quickly going to find your way around all of the information that is available to us.
I know it is very hard for you at present – I have the same illness and always think that my husband who cares for me has a much harder time of things than I ever do.
Keep your chin up – we know its very hard but you will get lots of support and help from the lovely people on this site.
Thinking of you both
Best wishes Carol xx

[charlielouiseParticipant]

hi alison thanks i will take a note pad but i will also have to take my two young children both under 3 lol so will be interesting.

carol thank you for the nice welcome, i'm sure your husband doesn't think that and enjoys doting on his wife 🙂

[sandydeliParticipant]

Hi there, if you need to know anything this is the site for you ask anything and someone will give a good answer. I know you'll all still be in shock but it does get better and things are not as bad as you first think.
I had stem cell transplant in October and now in remission.
So anytime you need help just ask.
Sandra.

[tomParticipant]

Hi charlielouise?s

A warm Welcome to the site. and am sorry you had to join, but we have some great folk on here to help and give advice.so any thing you need to know just ask and more so if you feel you need to vent your stress or anger at times here is the best place 😀

Good Luck on the MM road.

Love to you Both

Tom "Onwards and Upwards" xxx

[susieParticipant]

Hallo Alison
I was so surprised to see you've had cause to join this group. I'm sure you'll get all the support you need from these super people.
If you're wondering who I am, I used to work with you at that marvellous estabishment in chalfont st peter before I retired.
I'm so much better off than most on here as I only have MGUS so am being monitored 4 monthly.
I do hope things go well for you. Maybe we'll meet up at a "do" sometime.
Take Care
Sue

[ali49Participant]

HI Sue, I'm afraid that I can't put a face to your name, but It's nice to hear from an ex-colleaugue. I'm still at said establishment although it's all offices now. Do you live in the area?

It's a funny small world this, isn't it?:-)

[susieParticipant]

Hi Alison
If it helps you to remember me, you did come to my retirement do at the Harvester about 3yrs ago.I retired about a year after that "big move" we all had to bear. Obviously it would be unwise to put my surname on the web but I hope your memory is now jogged.
I gather you're back at work now. How are you in yourself? I do hope you are feeling more like the old you now your treatment is over.
Keep in touch
Best Wishes
Sue
Ps I still live in a village outside Wycombe

[ElizellenParticipant]

Welcome to the club which none of us asked to join, CharlieLouise, your nan is lucky to have such a caring grandaughter!

I just had a thought about where you could ask those questions if it is not possible at the consultant appointment – I was allocated a specialist nurse when I was diagnosed and was able to contact her at any time with any questions/problems.

If your nan is also given a SN then perhaps you can contact her when your nan (and the children) are not around so you can clarify things and ask any awkward/embarrassing questions.

Also there might be a support group locally where you could attend meetings either alone or with Nan and meet others in the same boat to make friends. The SN should be able to tell you about any meetings.

Hoping the MM journey that you are accompanying your nan along progresses well and uneventfully.

Love
Eliz
XX
X

[ali49Participant]

Oh of course, I was casting my mind too far back!!

[mhnevillParticipant]

Welcome CharlieLouise

So sorry your Nan has been diagnosed with MM and that you are having to come to terms with it all. With a young family you are going to have a busy time!

All best wishes.

Mavis

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