Hi everyone, to cut a very long story short it has taken us 2 years to get the GP to take my partner seriously. They finally listened to us in June and did further testing to determine why his serum protein was high and rising. These tests then led them to do a Myeloma screening which showed that he was in immunoparesis due to his IgG being elevated (26.7 g/L) and IgA/IgM being low. The also found he has an M-protein of 20.4 g/L, his lambda is 473.2 mg/L giving him a Kappa/Lambda ratio of 0.02. Thankfully, his other bloods such as his FBC, Kidney, Liver etc. all seem to be ok.
He was referred on the cancer pathway to hematology and has had a bone marrow biopsy, CT Scan and bloods. This was all completed 3 weeks ago and we were told around 3-4 weeks for the results with a follow up appointment currently schedules for September.
I have done nothing but research Myeloma and what this means for us. He is only 30 which is very young to have something like this. I understand that it is really the bone marrow that will give us the full diagnosis but I cant stop thinking about how his test is sitting in a lab somewhere when that’s our entire future. I do have concerns this could potentially be leaning into active myeloma just due to the number of symptoms he is experiencing. These include; Chest pain, back ache, sweats, itching. They could be completely unrelated but when you’re going through something like this, its hard not to connect the dots.
What are your coping mechanisms for the waiting? I cant lie, its not the emotional toll I’m struggling with its just the not knowing. It’s like an itch that I cant scratch. Strangely, i feel like i should be making the most of this time because while ever we don’t know specifics we are almost in a protective bubble. Sorry for rambling on its just been a tough time and i don’t have anyone to talk to that can relate to how i am feeling.
