Hi Chris
A belated welcome to the site,one minute you have everyday living and in the next minute you have joined the club as a carer.
In my mind Myeloma is a dreadful thing,your life does get taken over by it,we do hear of some people who sail through treatment,and go on to live as normal as possible,but we all have the knowledge that one day it will rear it,s ugly head,no cure but there has to be a first.:-)
My husbands dose of Dex was reduced and he was on the Myeloma Trials,so if it becomes to much let them know.After 18 months of different treatment he has just had his SCT,
The whole process is hard work not just for the patient but also the carer,it,s a big learning curve of trial and error.Different treatment for different people,we have all found the drugs effect people in different ways,and food and fluids taste different,so it,s all going to be trial and error,my advice is small amounts of food,try lots of different fluids even things he never liked,my husband developed a very sweet tooth,never touched puddings before:-P
You can get help on the money side,at the moment you might think you do not need it,your food bill will increase,transport,and clothes will all take a hit,you are entitled to help,so my advise is claim it.
I wish you and your husband a good journey,we have been doing it for 18 months,back wards and forward to hospitals,my husband came out of hospital on Friday,had appointment on Sunday,back to hospital tomorrow,plus on Thursday we have a 86 mile trip to Kings in London.
This is were the extra money comes in handy good luck Chris, Eve
