Thank you Eve for your advice

Am finding that even remembering what life was like before mm is difficult.
Diagnosis put the whole family in a tailspin, but it has been so wonderful to discover how kind and thoughtful our friends are.

But none of them would have known about the taste alteration problem! Am glad I have a few recipe books,…[Read more]

Hello David

The neck thing is Nick's major problem too. Waiting to see whether he needs surgery to stabilise where the fracture happened. I'm guessing he isn't the only one who found out he had mm by getting out of bed and breaking his neck!

Still didn't stop him going to work that day though…

He is getting very bored with the collar he…[Read more]

Hello David

My understanding is that the IV bisphosphonates are heavy duty and they are used where there is more damage, as they are taken up by the cells that break down bones more quickly.

The oral ones seem to be favoured for prevention, they do the same job, but with less side effects. They are used for treating osteoporosis as well as…[Read more]

Thank you all – it is so encouraging to hear your experiences. It can get a bit lonely in mm world!

I don't mind that Nick gets grumpy on the dex, he normally has the patience of a saint, though it was a bit of a shock to start with. Thanks Eve for suggesting dividing the final dose. Will ask the consultant about that at next clinic. The sleep…[Read more]

Thank you all for making me feel welcome and for your advice.

Unfortunately, my husband was diagnosed late and has already had radiotherapy for a collapsed vertebra. He has had several short courses of dex already and was hoping to get onto myeloma XI, but it would have meant retesting everything and the consent process would have delayed…[Read more]