Hi, I was only 52 years old when I found out that I had myeloma. It’s such a shock to be diagnosed with any form of cancer, but especially one which cannot be cured and requires ongoing treatment. Your sister will most likely need some time to adjust to the whole situation. She will be thinking about so many different factors, which is daunting when you are first diagnosed. I know that I was concerned about the actual chemo treatment and whether it would be successful, as well as how to tell my children, parents and friends, together with how I would cope with work, finances and
For further information about myeloma, there are a number of good websites such as this one, Myeloma Beacon and a good support group on Facebook. I would avoid the many other sites because some of the information can be out of date and some can be quite depressing. There is a wealth of information on this website about the various drug treatments and stem cell treatment. The myeloma uk nurses are also available to discuss any concerns or issues with you or your sister. I’ve also found the myeloma uk local information sessions very useful to attend because you can find out more about myeloma, the treatment options and future drugs, together with the opportunity to talk to other patients, doctors and nurses.
The good news is that there has been a lot of research and developments in myeloma drugs over the past ten years which have considerably improved the life expectancy for myeloma patients with many individuals living ten years or longer. I undertook four cycles of chemotherapy followed by a stem cell transplant in 2010, which gave me five years of remission. I am currently going through six cycles of chemo which should be followed by another stem cell transplant and hopefully will provide me with more years of remission.
Your sister is very fortunate to have your care and support through this difficult period. I hope all works out well.
Regards
Jan
