Increasing Thalidomide to 100mg

This topic contains 4 replies, has 4 voices, and was last updated by  dengilbert 10 years, 2 months ago.

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  • 16th August 2014 at 3:27 pm #117577

    dengilbert
    Participant

    Hello my Husband was recently diagnosed with MM  has just completed his first cycle of CDT not been too bad the Dex made him a bit strange !! Verbal diahorreah !! And mood swings !! Just had first review and Para Proteins have reduced from 37 to 20 so really pleased, however the Consultant wants to increase the Thalidomide from 50mg to 100 mg !! Any one out there had a similar experience ? And what if any difference did it make to them? He does have a thick head every morning but can cope with that. Thanks Den999

    16th August 2014 at 5:41 pm #117578

    Michele
    Participant

    Hello Den

    When I was put on CTD I initially started on a 100mg dose and had it put up to 200mg after 2 cycles. I didn’t feel any different. It was just more pills to take!

    I could have gone up to 400mg if needed but fortunately I responded very well on the lower doses.

    I hope your husband continues to respond well.

    16th August 2014 at 6:21 pm #117579

    ange
    Participant

    Hi Den

    I am on my 6th cycle of CDT and take 100 mg Thalidomide, it was reduced to 50 mg on cycle 5 because of side effects but I wasn’t responding so now back up to 100 mg. I would go along with what the Consultant suggests, your husband will be carefully monitored. Dex makes me rather talkative too! Best of luck with the treatment, hope your husband continues to make good progress.

    Best Wishes

    Andrea

    16th August 2014 at 8:03 pm #117580

    graemeandrewartha
    Participant

    Hi Den. I am now completing my 5th cycle. I started with 100mg of thalidomide then upto 150 and have been on 200mg for about 2 months. There are different reactions to all pills and potions supplied.  These then get adjusted as time goes on depending on how it is reported back to your doctor. My steroids were reduced when the Thalidomide went up. When has he been advised to take the Thalidomide, I find about 8.30pm as they can make you sleepy. If taken later maybe why the “thick head” in the morning.

    Regards

    Graeme

    26th August 2014 at 4:45 pm #117719

    dengilbert
    Participant

    Thanks for the replies folks he doesn’t seem too bad but has to get up several times in the night for the toilet !! Is that normal ? Good job he’s not on Frusemide !! Lol

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