Hello ted369
Yes, I have been on cholestyramine prescribed by my haematologist (well the clinical pharmacist in the haematology department) for nearly a year now, and it has changed my life! But, unlike you, I am only taking lenalidomide.
I had been struggling with diarrhoea for a while and mentioned it in a telephone consultation. I hadn’t known that it was due to the lenalidomide blocking bile acid reabsorption, and it often starts after taking lenalidomide for about six months.
I was immediately prescribed cholestyramine, I usually only take one sachet a day, with the meal that contains most fat (cheese sandwich for lunch?). It is quite awkward to take it with an evening meal as it would prevent the absorption of lenalidomide for four hours after taking. So I have a low fat meal in the evening, and that works pretty well (most of the time!)
I hope you can get it and it works well for you
Caro
